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MDS-RIGHT SIGNED

Providing the right care to the right patient with MyeloDysplastic Syndrome at the right time

Total Cost €

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EC-Contrib. €

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Partnership

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Project "MDS-RIGHT" data sheet

The following table provides information about the project.

Coordinator
STICHTING KATHOLIEKE UNIVERSITEIT 

Organization address
address: GEERT GROOTEPLEIN NOORD 9
city: NIJMEGEN
postcode: 6525 EZ
website: www.radboudumc.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Project website https://mds-right.eu/
 Total cost 5˙999˙998 €
 EC max contribution 5˙999˙997 € (100%)
 Programme 1. H2020-EU.3.1.3. (Treating and managing disease)
 Code Call H2020-PHC-2014-two-stage
 Funding Scheme RIA
 Starting year 2015
 Duration (year-month-day) from 2015-05-01   to  2020-04-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    STICHTING KATHOLIEKE UNIVERSITEIT NL (NIJMEGEN) coordinator 1˙869˙707.00
2    UNIVERSITY OF YORK UK (YORK NORTH YORKSHIRE) participant 1˙292˙735.00
3    GROUPE FRANCOPHONE DES MYELODYSPLASIES FR (PARIS) participant 589˙263.00
4    WESTFAELISCHE WILHELMS-UNIVERSITAET MUENSTER DE (MUENSTER) participant 445˙311.00
5    STIFTUNG ELN FOUNDATION DE (MANNHEIM) participant 417˙040.00
6    KAROLINSKA INSTITUTET SE (STOCKHOLM) participant 340˙897.00
7    ACADEMISCH ZIEKENHUIS GRONINGEN NL (GRONINGEN) participant 286˙943.00
8    UMIT- PRIVATE UNIVERSITAT FUER GESUNDHEITSWISSENSCHAFTEN, MEDIZINISCHEINFORMATIK UND TECHNIK GMBH AT (HALL IN TIROL) participant 205˙303.00
9    UNIVERSITA DEGLI STUDI DI PAVIA IT (PAVIA) participant 152˙530.00
10    MEDIZINISCHE UNIVERSITAT INNSBRUCK AT (INNSBRUCK) participant 144˙347.00
11    STICHTING VUMC NL (AMSTERDAM) participant 143˙218.00
12    FUNDACION INSTITUTO DE ESTUDIOS DE CIENCIAS DE LA SALUD DE CASTILLA Y LEON ES (SORIA) participant 35˙145.00
13    FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA ES (VALENCIA) participant 35˙145.00
14    THE LEEDS TEACHING HOSPITALS NATIONAL HEALTH SERVICE TRUST UK (LEEDS) participant 35˙145.00
15    FONDAZIONE G.I.M.EM.A. - FRANCO MANDELLI ONLUS IT (ROMA) participant 7˙265.00
16    STICHTING VU NL (AMSTERDAM) participant 0.00

Map

 Project objective

Myelodysplastic syndromes (MDS) are chronic bone marrow malignancies of the elderly, complicated by severe anaemia. MDS significantly affects quality-adjusted survival and it imposes an increasing financial burden on patients and healthcare (HC) systems. The burden of disease is expected to worsen in the future, given the aging EU population and newly identified MDS cases among those diagnosed with ‘Anaemia of the Elderly’. EUMDS - a unique registry with prospective, observational data on 1600 lower-risk MDS patients from 16 EU countries - enables comparison of existing MDS HC interventions (HCI). Objectives 1) Comparison of outcomes and costs of existing HCI, using established and new core outcome sets. This, alongside health technology assessment, will provide robust evidence to underpin sustainable use of HC resources; 2) Enhanced compliance with diagnostic procedures in MDS by introducing new minimally-invasive diagnostic methods. This will increase the number of correctly and timely diagnosed MDS patients; 3) Raised awareness of the relevance of obtaining the right diagnosis in elderly by comparing HRQoL between EUMDS and against a non-MDS cohort. This will improve HRQoL of individual patients through better tailoring of HCI; 4) Better outcome predictability of available HCI by refining classification of cases using molecular characterisation to incorporate response to HCI and to provide evidence for personalised medicine; 5) Improved, evidence-based, guidelines supporting the regulatory process, and providing information to patients and physicians to promote personalised decisions in MDS care; 6) Establishment of a European MDS competence network encompassing all stakeholders in the MDS field. Relevance Better treatment compliance, a more evidence-based use of HCI and an increasing tailored use of existing HC options will contribute to an efficient and cost effective (personalised) use of HC resources for elderly patients with MDS and their co-morbidities.

 Deliverables

List of deliverables.
Report of ethical, legal, and socio-economical aspects of the elderly low risk MDS population Documents, reports 2020-02-26 16:44:33
Periodic report on immunophenotyping in various cohorts Documents, reports 2020-02-26 16:44:33
Report of two meetings on state-of-the-art in the field of MDS Documents, reports 2020-02-26 16:44:33
Yearly updates of MDS website Websites, patent fillings, videos etc. 2020-02-26 16:44:33
Report of early treatment response indicators supporting a targeted use of existing HCI Demonstrators, pilots, prototypes 2020-02-26 16:44:32
Report describing prognostic impact of newly defined individual genetic defects on response to the existing HCI Documents, reports 2020-02-26 16:44:32
Periodic report on mutational sequencing and epigenetic profiling in various cohorts Documents, reports 2020-02-26 16:44:33
Periodic report on bioinformatic integration of data Documents, reports 2020-02-26 16:44:32
Validation of a MDS-specific HRQoL questionnaire (QUALMS-1) Documents, reports 2020-02-26 16:44:32
Final dataset incorporating data generated from WP2, WP3 & WP4 Documents, reports 2020-02-26 16:44:33
Promotion of educational and scientific meetings, pocket cards, posters, flyers, exhibition booth for meetings Demonstrators, pilots, prototypes 2020-02-26 16:44:31
Scientific, Clinical and Ethics Advisory Board Other 2020-02-26 16:44:31
Report on new COS including patient-reported, disease-specific outcomes Documents, reports 2020-02-26 16:44:31
Discussion platforms and a common website for stakeholder interaction Websites, patent fillings, videos etc. 2020-02-26 16:44:31
Approved European and International guidelines uploaded at new ELN-linked website Documents, reports 2020-02-26 16:44:31
Completed catalogue of all MDS caregiver cooperative groups, patient support groups and existing documents Documents, reports 2020-02-26 16:44:31
Operational project specific MDS-RIGHT website Websites, patent fillings, videos etc. 2020-02-26 16:44:31

Take a look to the deliverables list in detail:  detailed list of MDS-RIGHT deliverables.

 Publications

year authors and title journal last update
List of publications.
2019 Hanneke J.C.M. Wouters, Melanie M. van der Klauw, Theo de Witte, Reinhard Stauder, Dorine W. Swinkels, Bruce H.R. Wolffenbuttel, Gerwin Huls
Association of anemia with health-related quality of life and survival: a large population-based cohort study
published pages: 468-476, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.195552
Haematologica 104/3 2020-03-05
2019 Valentin Goede, Reinhard Stauder
Multidisciplinary care in the hematology clinic: Implementation of geriatric oncology
published pages: 497-503, ISSN: 1879-4068, DOI: 10.1016/j.jgo.2018.09.003
Journal of Geriatric Oncology 10/3 2020-03-05
2019 Margot F. van Spronsen, Theresia M. Westers, Birgit I. Lissenberg-Witte, Mariëlle Wondergem, Gert J. Ossenkoppele, Arjan A. van de Loosdrecht
The non-erythroid myeloblast count rule in myelodysplastic syndromes: fruitful or futile?
published pages: e547-e550, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212563
Haematologica 104/12 2020-02-26
2017 Margot F. van Spronsen, Theresia M. Westers, Hanne Rozema, Gert J. Ossenkoppele, Robby E. Kibbelaar, Mels Hoogendoorn, Arjan A. van de Loosdrecht
Validation of and proposals for refinements of the WHO 2016 classification for myelodysplastic syndromes
published pages: E631-E634, ISSN: 0361-8609, DOI: 10.1002/ajh.24867
American Journal of Hematology 92/11 2020-02-26
2017 Howard S. Oster, Gal Carmi, Alex Kolomansky, Erel Joffe, Irit Kaye, Ilya Kirgner, Uri Greenbaum, Doron Comaneshter, Moshe Mittelman
Is bone marrow examination always necessary to establish the diagnosis of myelodysplastic syndromes? A proposed non-invasive diagnostic model
published pages: 2227-2232, ISSN: 1042-8194, DOI: 10.1080/10428194.2017.1416363
Leukemia & Lymphoma 59/9 2020-02-26
2019 Carolien Duetz, Theresia M. Westers, Arjan A. van de Loosdrecht
Clinical Implication of Multi-Parameter Flow Cytometry in Myelodysplastic Syndromes
published pages: 14-23, ISSN: 1015-2008, DOI: 10.1159/000490727
Pathobiology 86/1 2020-02-26
2019 Sylvain Barreau, Alexa S. Green, Charles Dussiau, Anne‐Sophie Alary, Anna Raimbault, Stephanie Mathis, Lise Willems, Didier Bouscary, Olivier Kosmider, Valerie Bardet, Michaela Fontenay, Nicolas Chapuis
Phenotypic landscape of granulocytes and monocytes by multiparametric flow cytometry: A prospective study of a 1‐tube panel strategy for diagnosis and prognosis of patients with MDS
published pages: , ISSN: 1552-4949, DOI: 10.1002/cyto.b.21843
Cytometry Part B: Clinical Cytometry 2020-02-26
2018 Charles Dussiau, Michaela Fontenay
Mechanisms underlying the heterogeneity of myelodysplastic syndromes
published pages: 17-26, ISSN: 0301-472X, DOI: 10.1016/j.exphem.2017.10.004
Experimental Hematology 58 2020-02-26
2018 Uri Greenbaum, Erel Joffe, Kalman Filanovsky, Howard S. Oster, Ilya Kirgner, Itai Levi, Pia Raanani, Irit Avivi, Esther Manor, Gili Man-El, Moshe Mittelman
Can bone marrow cellularity help in predicting prognosis in myelodysplastic syndromes?
published pages: 502-507, ISSN: 0902-4441, DOI: 10.1111/ejh.13134
European Journal of Haematology 101/4 2020-02-26
2018 Tobias Johannes Brix, Philipp Bruland, Saad Sarfraz, Jan Ernsting, Philipp Neuhaus, Michael Storck, Justin Doods, Sonja Ständer, Martin Dugas
ODM Data Analysis—A tool for the automatic validation, monitoring and generation of generic descriptive statistics of patient data
published pages: e0199242, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0199242
PLOS ONE 13/6 2020-02-26
2018 Sarah Sandmann, Mohsen Karimi, Aniek O de Graaf, Christian Rohde, Stefanie Göllner, Julian Varghese, Jan Ernsting, Gunilla Walldin, Bert A van der Reijden, Carsten Müller-Tidow, Luca Malcovati, Eva Hellström-Lindberg, Joop H Jansen, Martin Dugas
appreci8: a pipeline for precise variant calling integrating 8 tools
published pages: 4205-4212, ISSN: 1367-4803, DOI: 10.1093/bioinformatics/bty518
Bioinformatics 34/24 2020-02-26
2019 Carolien Duetz, Costa Bachas, Theresia M. Westers, Arjan A. van de Loosdrecht
Computational analysis of flow cytometry data in hematological malignancies
published pages: 1, ISSN: 1040-8746, DOI: 10.1097/cco.0000000000000607
Current Opinion in Oncology 32 (2020) [2019 Epub ahead of p 2020-02-26
2019 Louise de Swart, Simon Crouch, Marlijn Hoeks, Alex Smith, Saskia Langemeijer, Pierre Fenaux, Argiris Symeonidis, Jaroslav Čermák, Eva Hellström-Lindberg, Reinhard Stauder, Guillermo Sanz, Moshe Mittelman, Mette Skov Holm, Luca Malcovati, Krzysztof Mądry, Ulrich Germing, Aurelia Tatic, Aleksandar Savic, Antonio Medina Almeida, Njetočka Gredelj-Šimec, Agnes Guerci-Bresler, Odile Beyne-Rauzy, D
Impact of red blood cell transfusion dose density on progression-free survival in lower-risk myelodysplastic syndromes patients
published pages: haematol.2018.21, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212217
Haematologica Haematologica 2019 Jun 6; Epub 2020-02-26
2019 Marlijn Hoeks, Ge Yu, Saskia Langemeijer, Simon Crouch, Louise de Swart, Pierre Fenaux, Argiris Symeonidis, Jaroslav Čermák, Eva Hellström-Lindberg, Guillermo Sanz, Reinhard Stauder, Mette Skov Holm, Moshe Mittelman, Krzysztof Mądry, Luca Malcovati, Aurelia Tatic, Antonio Medina Almeida, Ulrich Germing, Aleksandar Savic, Njetočka Gredelj Šimec, Dominic Culligan, Raphael Itzykson, Agnes Guerc
Impact of treatment with iron chelation therapy in patients with lower-risk myelodysplastic syndromes participating in the European MDS registry
published pages: haematol.2018.21, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212332
Haematologica Haematologica 2019 Jul 5; Epub 2020-02-26
2017 Pedro da Silva-Coelho, Leonie I. Kroeze, Kenichi Yoshida, Theresia N. Koorenhof-Scheele, Ruth Knops, Louis T. van de Locht, Aniek O. de Graaf, Marion Massop, Sarah Sandmann, Martin Dugas, Marian J. Stevens-Kroef, Jaroslav Cermak, Yuichi Shiraishi, Kenichi Chiba, Hiroko Tanaka, Satoru Miyano, Theo de Witte, Nicole M. A. Blijlevens, Petra Muus, Gerwin Huls, Bert A. van der Reijden, Seishi Ogawa, Joop H. Jansen
Clonal evolution in myelodysplastic syndromes
published pages: 15099, ISSN: 2041-1723, DOI: 10.1038/ncomms15099
Nature Communications 8 2020-02-26
2017 de Swart L, Crouch S, Hoeks M, Smith A, Langemeijer S, Fenaux P, Symeonidis A, Cermak J, Stauder R, Mittelman M, Sanz G, Hellstrom-Lindberg E, Malcovati L, Holm MS, Germing U, Madry K, Almeida AM, Tatic A, Savic A, Gredelj-Å imec N, Guerci Bresler A, Culligan D, Itzykson R, Beyne-Rauzy O, Park S, van Marrewijk C, Blijlevens NMA Bowen DT, de Witte TM.
Impact of Red Blood Cell Transfusion Intensity on Progression-Free Survival in Lower-Risk MDS Patients Included in the European Leukemianet MDS Registry
published pages: \"#1690\", ISSN: , DOI:
Blood 130, S1 2020-02-26
2018 Daniel Moreno Berggren, Yasin Folkvaljon, Marie Engvall, Johan Sundberg, Mats Lambe, Petar Antunovic, Hege Garelius, Fryderyk Lorenz, Lars Nilsson, Bengt Rasmussen, Sören Lehmann, Eva Hellström-Lindberg, Martin Jädersten, Elisabeth Ejerblad
Prognostic scoring systems for myelodysplastic syndromes (MDS) in a population-based setting: a report from the Swedish MDS register
published pages: 614-627, ISSN: 0007-1048, DOI: 10.1111/bjh.15243
British Journal of Haematology 181/5 2020-02-26
2017 Itzykson R, Crouch S, Smith A, Symeonidis A, Hellstrom-Lindberg E, Sanz G, Cermak J, Stauder R, Malcovati L, Germing U, Mittelman M, Langemeijer S, Madry K, Tatic A, Holm MS, Almeida AM, Savic A, Gredelj-Šimec N, Luño Fernandez E, Culligan D, Guerci Bresler A, van Marrewijk C, Bowen DT, de Witte TM, Fenaux P.
A Prognostic Classifier Based on Early Platelet Drop in Lower-Risk MDS a Study from the European Leukemianet Lower-Risk MDS (EUMDS) Registry
published pages: \"#158\", ISSN: , DOI:
Blood 130, S1 2020-02-26
2018 Marius Wöste, Martin Dugas
VIPER: a web application for rapid expert review of variant calls
published pages: 1928-1929, ISSN: 1367-4803, DOI: 10.1093/bioinformatics/bty022
Bioinformatics 34/11 2020-02-26
2017 Itzykson R, Smith A, Fenaux P, Symeonidis A, Mittelman M, Stauder R, Sanz G, Cermak J, Hellstrom-Lindberg E, Malcovati L, Langemeijer S, Germing U, Madry KM, Holm MS, Tatic A, Almeida AM, Savic A, Gredelj-Å imec N, Bowen D, de Witte T.
Prognostic Value of Early Drop in Platelets in Lower-Risk MDS. A Sub-Study from the European Leukemianet Lower-Risk MDS (EUMDS) Registry
published pages: \"#19, S10-11\", ISSN: , DOI:
Leukemia Research 55, S1 2020-02-26
2017 Sarah Sandmann, Aniek O. de Graaf, Mohsen Karimi, Bert A. van der Reijden, Eva Hellström-Lindberg, Joop H. Jansen, Martin Dugas
Evaluating Variant Calling Tools for Non-Matched Next-Generation Sequencing Data
published pages: 43169, ISSN: 2045-2322, DOI: 10.1038/srep43169
Scientific Reports 7 2020-02-26
2018 Thomas Patton, Chu-Mei Hung, Martin Henriksson, Mirjana Huić, Ana Patrícia Marques, Sibylle Puntscher, Đurđa Vukićević, Matteo Ruggeri, Andrea Manca
Identifying Multinational Cost Data: A Methodological Review and Case Study
published pages: , ISSN: , DOI:
EUHEA conference 2018, Maastricht July 2018 2020-02-26
2018 Stojkov I, Rochau U, Conrads-Frank A, Borba HH, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U.
Systematic Overview of Patient-Reported Outcomes for Myelodysplastic Syndromes
published pages: , ISSN: , DOI:
17th Biennial European Conference of the Society for Medical Decision Making 2020-02-26
2017 de Swart L, Crouch S, Smith A, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Malcovati L, Germing U, Langemeijer S, Holm MS, Mittelman M, MÄ…dry K, Almeida A, Savic A, Itzykson R, Bowen D, de Witte T.
Impact of Red Blood Cell Transfusions on Survival in Lower-Risk MDS Patients Included in the European Leukemianet MDS (EUMDS) Registry
published pages: \"#280, S160-161, ISSN: , DOI:
Leukemia Research 55, S1 2020-02-26
2017 Sarah Sandmann, Aniek O. de Graaf, Martin Dugas
BBCAnalyzer: a visual approach to facilitate variant calling
published pages: , ISSN: 1471-2105, DOI: 10.1186/s12859-017-1549-4
BMC Bioinformatics 18/1 2020-02-26
2017 Stauder R, Yu G, Koinig K, Fenaux P, Symeonidis A, Sanz G, Cermak J, Mittelman M, Hellstrom-Lindberg E, Langemeijer S, Holm MS, Madry K, Malcovati L, Tatic A, Germing U, Savic A, Efficace F, Smith A, Bowen D, de Witte T.
Health-Related Quality of Life Is Substantially Impaired in Lower-Risk MDS When Compared with Reference Populations and Significantly Affects Overall Survival
published pages: \"#22, S12\", ISSN: , DOI:
Leukemia Research 55, S1 2020-02-26
2018 Hege Garelius, MD
Registry studies on myelodysplastic syndrome and secondary acute myeloid leukemia
published pages: , ISSN: , DOI:
4 May 2020-02-26
2018 Christian Scharenberg, MD
The mutational landscape and microenvironment in Myelodysplastic Syndromes with deletion of chromosome 5q
published pages: , ISSN: , DOI:
2 March 2020-02-26
2018 Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A.
Impact van behandeling met ijzerchelatietherapie op patiënten met een laag-risico myelodysplastisch syndroom die deelnemen aan de Europese MDS registratie
published pages: , ISSN: , DOI:
NVB-TRIP 2020-02-26
2018 Langemeijer S (& Hoeks M)
IJzerchelatie bij laag-risico myelodysplsie
published pages: , ISSN: 1572-1590, DOI:
Nederlands Tijdschrift voor Hematologie 2020-02-26
2017 Marius Wöste, Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen, and Martin Dugas
Detecting small structural variants in amplicon-based NGS data - an evaluation of ten algorithms
published pages: , ISSN: , DOI:
ISMB abstrats 2020-02-26
2017 Theo de Witte, David Bowen, Marie Robin, Luca Malcovati, Dietger Niederwieser, Ibrahim Yakoub-Agha, Ghulam J. Mufti, Pierre Fenaux, Guillermo Sanz, Rodrigo Martino, Emilio Paolo Alessandrino, Francesco Onida, Argiris Symeonidis, Jakob Passweg, Guido Kobbe, Arnold Ganser, Uwe Platzbecker, Jürgen Finke, Michel van Gelder, Arjan A. van de Loosdrecht, Per Ljungman, Reinhard Stauder, Liisa Volin, H. Joachim Deeg, Corey Cutler, Wael Saber, Richard Champlin, Sergio Giralt, Claudio Anasetti, Nicolaus Kröger
Allogeneic hematopoietic stem cell transplantation for MDS and CMML: recommendations from an international expert panel
published pages: 1753-1762, ISSN: 0006-4971, DOI: 10.1182/blood-2016-06-724500
Blood 129/13 2020-02-26
2018 Gerbrig Berger, Leonie I. Kroeze, Theresia N. Koorenhof-Scheele, Aniek O. de Graaf, Kenichi Yoshida, Hiroo Ueno, Yuichi Shiraishi, Satoru Miyano, Eva van den Berg, Hein Schepers, Bert A. van der Reijden, Seishi Ogawa, Edo Vellenga, Joop H. Jansen
Early detection and evolution of preleukemic clones in therapy-related myeloid neoplasms following autologous SCT
published pages: 1846-1857, ISSN: 0006-4971, DOI: 10.1182/blood-2017-09-805879
Blood 131/16 2020-02-26
2018 Stojkov I, Conrads-Frank A, Rochau U, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U
Identifying Predictors for Low Health-Related Quality of Life in Patients with Myelodysplastic Syndromes – Research Protocol
published pages: , ISSN: , DOI:
Annual Conference of the German Network for Evidence-based Medicine 2020-02-26
2017 Christian Scharenberg, Valentina Giai, Andrea Pellagatti, Leonie Saft, Marios Dimitriou, Monika Jansson, Martin Jädersten, Alf Grandien, Iyadh Douagi, Donna S. Neuberg, Katarina LeBlanc, Jacqueline Boultwood, Mohsen Karimi, Sten Eirik W. Jacobsen, Petter S. Woll, Eva Hellström-Lindberg
Progression in patients with low- and intermediate-1-risk del(5q) myelodysplastic syndromes is predicted by a limited subset of mutations
published pages: 498-508, ISSN: 0390-6078, DOI: 10.3324/haematol.2016.152025
Haematologica 102/3 2020-02-26
2018 Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A.
Impact of Treatment with Iron Chelation Therapy in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry
published pages: , ISSN: , DOI:
Dutch Hematology Congress 2018 (Nederlands Tijdshrift voor Geneeskunde) 2020-02-26
2017 Sandmann S, de Graaf AO, Karimi M, van der Reijden BA, Hellström-Lindberg E, Jansen JH, Dugas M
Benchmarking Variant Calling Tools for NGS Data
published pages: , ISSN: , DOI:
F1000Research 6(ISCB Comm J):1353 2020-02-26
2018 Stojkov I, Rochau U, Conrads-Frank A, Koinig K.A., Arvandi M, Symeonidis A, Sanz G, Fenaux P, Bowen D, Mittelmann M, Garelius H, Germing U, van Marrewijk C , Cermak J, Hellström-Lindberg E, Smith A, de Witte T, Efficace F, Stauder R, Siebert U.
Developing a Core Outcome Set for Myelodysplastic Syndromes - an International Delphi Survey
published pages: , ISSN: , DOI:
40th Annual North American Meeting of the Society for Medical Decision Making october 2018 2020-02-26
2017 Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A.
Impact of Treatment with Iron Chelation Therapy in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry
published pages: \"#425\", ISSN: , DOI:
Blood 130, S1 2020-02-26
2017 Sandmann S, de Graaf AO, Karimi M, van der Reijden BA, Hellström-Lindberg E, Jansen JH, Dugas M
Appreci8: a pipeline for precise variant calling integrating 8 tools
published pages: , ISSN: , DOI:
Haematologica 102,S2, Jun 26 2020-02-26
2018 Wouters HJCM, Van der Klauw MM, de Witte T, Stauder R, Swinkels DW, Wolffenbuttel BHR, Huls G
Impact of anemia on health-related quality of life depends on age and etiology
published pages: , ISSN: , DOI:
Dutch Hematology Congress 2018 (Nederlands Tijdshrift voor Geneeskunde) 2020-02-26
2018 Stojkov I, Conrads-Frank A, Rochau U, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U
Deriving Core Outcomes for Myelodysplastic Syndromes – Health Professionals’ Perspective
published pages: , ISSN: , DOI:
Annual Conference of the German Network for Evidence-based Medicine 2020-02-26
2016 Stojkov I, Rochau U, Borba HH, Jevdjevic M, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U.
Systematic Review of Quality of Life Measurement Instruments and Response Criteria among Patients with Myelodysplastic Syndromes
published pages: A596, ISSN: , DOI:
ISPOR 19th Annual European Congress 19/7 2020-02-26
2018 de Swart L, Hoeks M, Crouch S, Smith A, Langemeijer S, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Stauder R, Sanz G, Mittelman M, Holm MS, Malcovati L, Madry K, Germing U, Savic A, Almeida AM, Guerci Bresler A, Itzykson R, Beyne-Rauzy O, Culligan D, van Marrewijk C, Blijlevens NMA Bowen DT, de Witte TM.
Impact of Red Blood Cell Transfusion Rate, Adjusted by Therapeutic interventions, on Progression-Free Survival in Lower-Risk MDS Patients within the European LeukemiaNet MDS Registry
published pages: , ISSN: , DOI:
Haematologica 103, S1 2020-02-26
2018 Itzykson R, Crouch S, Malcovati L, Smith A, Symeonidis A, Hellström-Lindberg E, Sanz S, Čermák J, Stauder R, Travaglino E, Germing U, Mittelman M, Langemeijer S, Mądry K, Tatic A, Holm MS, Medina Almeida A, Savic A, Gredelj Šimec N, Luño E, Culligan D, Guerci-Bresler A, Elena C, van Marrewijk C, Bowen D, de Witte TJ, Fenaux P on behalf of the European MDS Registry members
Early platelet count kinetics has prognostic value in lower-risk MDS
published pages: not yet known, ISSN: 2473-9537, DOI:
Blood Advances (accepted for publication) not yet known 2020-02-26
2018 Stojkov I, Conrads-Frank A, Rochau U, Koinig K.A., Arvandi M, Symeonidis A, Sanz G, Fenaux P, Bowen D, Mittelmann M, Garelius H, Germing U, van Marrewijk C , Cermak J, Hellström-Lindberg E, Smith A, de Witte T, Efficace F, Siebert U, Stauder R.
Developing a Core Outcomes for Myelodysplastic Syndromes – The MDS-RIGHT Health Professional Delphi Survey
published pages: , ISSN: , DOI:
Haematologica 103, S1 2020-02-26
2017 Sarah Sandmann, Aniek O. de Graaf, Bert A. van der Reijden, Joop H. Jansen, Martin Dugas
GLM-based optimization of NGS data analysis: A case study of Roche 454, Ion Torrent PGM and Illumina NextSeq sequencing data
published pages: e0171983, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0171983
PLOS ONE 12/2 2020-02-26
2018 Reinhard Stauder, Ge Yu, Karin A. Koinig, Tim Bagguley, Pierre Fenaux, Argiris Symeonidis, Guillermo Sanz, Jaroslav Cermak, Moshe Mittelman, Eva Hellström-Lindberg, Saskia Langemeijer, Mette Skov Holm, Krzysztof Mądry, Luca Malcovati, Aurelia Tatic, Ulrich Germing, Aleksandar Savic, Corine van Marrewijk, Agnès Guerci-Bresler, Elisa Luño, Jackie Droste, Fabio Efficace, Alex Smith, David Bowen, Theo de Witte
Health-related quality of life in lower-risk MDS patients compared with age- and sex-matched reference populations: a European LeukemiaNet study
published pages: 1380-1392, ISSN: 0887-6924, DOI: 10.1038/s41375-018-0089-x
Leukemia 32/6 2020-02-26
2016 Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen and Martin Dugas
Confident Variant Calling in NGS Data – A Mission Impossible?
published pages: , ISSN: , DOI:
F1000Research 2020-02-26
2016 Marlijn Hoeks, Saskia Langemeijer, Louise De Swart, Tim Bagguley, Corine van Marrewijk, David Bowen, Jaroslav Cermak, Eva Hellstrom-Lindberg, Aurelia Tatic, Argiris Symeonidis, Marian G.J. Van Kraaij, Panagiotis Panagiotidis, Hege Garelius, Dominic J Culligan, Marta Krejci, Jackie Droste, Alexandra Smith, Dorine W. Swinkels and Theo de Witte
Elevated Labile Plasma Iron Levels (LPI) and Increased Oxidative Stress Are Associated with Red Blood Cell Transfusions in Patients with Lower-Risk Myelodysplastic Syndromes (MDS) Subtitle: from the European Leukemianet MDS Registry
published pages: 4327, ISSN: , DOI:
Blood 128 2020-02-26
2016 Eline M.P. Cremers, Theresia M. Westers, Canan Alhan, Claudia Cali, Mariëlle J. Wondergem, Pino J. Poddighe, Gert J. Ossenkoppele, Arjan A. van de Loosdrecht
Multiparameter flow cytometry is instrumental to distinguish myelodysplastic syndromes from non-neoplastic cytopenias
published pages: 49-56, ISSN: 0959-8049, DOI: 10.1016/j.ejca.2015.11.013
European Journal of Cancer 54 2020-02-26
2016 Margot F. van Spronsen, Gert J. Ossenkoppele, Theresia M. Westers, Arjan A. van de Loosdrecht
Prognostic relevance of morphological classification models for myelodysplastic syndromes in an era of the revised International Prognostic Scoring System
published pages: 10-20, ISSN: 0959-8049, DOI: 10.1016/j.ejca.2015.12.004
European Journal of Cancer 56 2020-02-26
2017 Louise de Swart, Chloé Reiniers, Timothy Bagguley, Corine van Marrewijk, David Bowen, Eva Hellström-Lindberg, Aurelia Tatic, Argiris Symeonidis, Gerwin Huls, Jaroslav Cermak, Arjan A. van de Loosdrecht, Hege Garelius, Dominic Culligan, Mac Macheta, Michail Spanoudakis, Panagiotis Panagiotidis, Marta Krejci, Nicole Blijlevens, Saskia Langemeijer, Jackie Droste, Dorine W. Swinkels, Alex Smith, Theo de Witte
Labile plasma iron levels predict survival in patients with lower-risk myelodysplastic syndromes
published pages: 69-79, ISSN: 0390-6078, DOI: 10.3324/haematol.2017.171884
Haematologica 103/1 2020-02-26
2016 Saskia Langemeijer, Louise De Swart, Ge Yu, Alex Smith, Simon Crouch, Tom Johnston, Pierre Fenaux, Argiris Symeonidis, Jaroslav Cermak, Eva Hellstrom-Lindberg, Guillermo Sanz, Reinhard Stauder, Luca Malcovati, Ulrich Germing, Mette Skov Holm, Moshe Mittelman, Krzysztof Madry, Aurelia Tatic, Antonio Almeida, Aleksandar Savic, Sophie Park, Odile Beyne-Rauzy, Raphaël Itzykson, Corine van Marrewijk, David Bowen and Theo de Witte
Impact of Treatment with Iron Chelators in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry
published pages: 3186, ISSN: , DOI:
Blood 128 2020-02-26
2016 E. M. P. Cremers, T. M. Westers, C. Alhan, C. Cali, H. A. Visser-Wisselaar, D. A. Chitu, V. H. J. van der Velden, J. G. te Marvelde, S. K. Klein, P. Muus, E. Vellenga, G. E. De Greef, M.-C. C. J. C. Legdeur, P. W. Wijermans, M. J. P. L. Stevens-Kroef, P. da Silva-Coelho, J. H. Jansen, G. J. Ossenkoppele, A. A. van de Loosdrecht
Implementation of erythroid lineage analysis by flow cytometry in diagnostic models for myelodysplastic syndromes
published pages: , ISSN: 0390-6078, DOI: 10.3324/haematol.2016.147843
Haematologica 2020-02-26
2015 Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen and Martin Dugas
Evaluating and Optimizing Variant Calling: A Comparison ofRoche 454, Ion Torrent PGM and Illumina NextSeq Sequencing Data
published pages: , ISSN: , DOI:
F1000Research 2020-02-26
2016 Igor Stojkov, Ursula Rochau, Helena Borba, Milica Jevdjevic, Karin Koinig, Marjan Arvandi, Fabio Efficace, Reinhard Stauder, Uwe Siebert
Systematic Overview of Response Criteria among Patients with Myelodysplastic Syndromes
published pages: , ISSN: , DOI:
Society for Medical Decision Making, 38th Annual North American Meeting 2020-02-26
2016 Reinhard Stauder , Ge Yu , Tim Bagguley , Pierre Fenaux , Argiris Symeonidis , Guillermo Sanz , Jaroslav Cermak , Moshe Mittelman , Eva Hellström-Lindberg , Saskia Langemeijer , Mette Skov Holm , Krzysztof Mądry , Luca Malcovati , Aurelia Tatic , Ulrich Germing , Aleksandar Savic , Corine van Marrewijk , Agnès Guerci-Bresler , Elisa Luño , Jackie Droste , Karin Koinig , Alex Smith , David Bowen , Theo de Witte
Comparison of 1690 MDS Patients from the European LeukemiaNet Registry and Reference Populations - Evidence for a Significant impairment in QoL in MDS and Definition of Predictors of Diminished QoL
published pages: , ISSN: , DOI:
Hematologica Volume: 101 Pages: 16-17 Supp 2020-02-26
2016 H. K. G. Garelius, W. T. Johnston, A. G. Smith, S. Park, L. de Swart, P. Fenaux, A. Symeonidis, G. Sanz, J. Čermák, R. Stauder, L. Malcovati, M. Mittelman, A. A. van de Loosdrecht, C. J. van Marrewijk, D. Bowen, S. Crouch, T. J. M. de Witte, E. Hellström-Lindberg
Erythropoiesis-stimulating agents significantly delay the onset of a regular transfusion need in nontransfused patients with lower-risk myelodysplastic syndrome
published pages: , ISSN: 0954-6820, DOI: 10.1111/joim.12579
Journal of Internal Medicine 2020-02-26

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "MDS-RIGHT" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an  email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "MDS-RIGHT" are provided by the European Opendata Portal: CORDIS opendata.

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