PRISMA

Reflecting the Positive diveRsities of European prIorities for reSearch and Measurement in end of life cAre

Coordinatore	KING'S COLLEGE LONDON    more  Organization address address: Strand city: LONDON postcode: WC2R 2LS contact info Titolo: Mr. Nome: Paul Cognome: Labbett Email: send email Telefono: +44 20 7848 8184 Fax: +44 20 7848 8187
Nazionalità Coordinatore	United Kingdom [UK]
Sito del progetto	http://www.prismafp7.eu
Totale costo	1˙827˙202 €
EC contributo	1˙650˙898 €
Programma	FP7-HEALTH Specific Programme "Cooperation": Health
Code Call	FP7-HEALTH-2007-A
Funding Scheme	CSA-CA
Anno di inizio	2008
Periodo (anno-mese-giorno)	2008-05-01   -   2011-04-30

 Partecipanti

#	participant	country	role	EC contrib. [€]
1	KING'S COLLEGE LONDON  Organization address address: Strand city: LONDON postcode: WC2R 2LS contact info Titolo: Mr. Nome: Paul Cognome: Labbett Email: send email Telefono: +44 20 7848 8184 Fax: +44 20 7848 8187	UK (LONDON)	coordinator	0.00
2	AFRICAN PALLIATIVE CARE ASSOCIATION  Organization address address: Dr Gibbons Road city: KAMPALA postcode: - contact info Titolo: Dr. Nome: Faith Cognome: Mwangi-Powell Email: send email Telefono: +256 414 266 251 Fax: +256 414 266 217	UG (KAMPALA)	participant	0.00
3	CENTRO DE ESTUDOS E INVESTIGACAO EM SAUDE DA UNIVERSIDADE DE COIMBRA  Organization address address: AVENIDA DIAS DA SILVA 165 city: COIMBRA postcode: 3000 512 contact info Titolo: Ms. Nome: Gabriela Cognome: Correia Email: send email Telefono: -9790182 Fax: -9790186	PT (COIMBRA)	participant	0.00
4	DEUTSCHE GESELLSCHAFT FUER PALLIATIVMEDIZIN  Organization address address: AACHENERSTRASSE 5 city: BERLIN postcode: 10713 contact info Titolo: Prof. Nome: Thomas Cognome: Schindler Email: send email Telefono: +49 1805 22 14 01 Fax: +49 1805 22 14 01	DE (BERLIN)	participant	0.00
5	FEDERATIE PALLIATIEVE ZORG VLAANDEREN  Organization address address: J. van der Vekenstraat city: WEMMEL postcode: 1780 contact info Titolo: Dr. Nome: Paul Jozef Georges Maria Cognome: Vanden Berghe Email: send email Telefono: -4568178 Fax: -4612411	BE (WEMMEL)	participant	0.00
6	FUNDACIO PRIVADA CLINIC PER A LA RECERCA BIOMEDICA  Organization address address: CARRER ROSSELLO 149-153 city: BARCELONA postcode: 8029 contact info Titolo: Mr. Nome: Emili Cognome: Bargalló Email: send email Telefono: +34 93 227 5707 Fax: +34 93 451 5272	ES (BARCELONA)	participant	0.00
7	HOSPITAL SANTA MARIA  Organization address address: Av. Prof. Egas Moniz city: LISBON postcode: 1644035 contact info Titolo: Ms. Nome: Maria De Jesus Cognome: Lopes Barata Email: send email Telefono: +351 217 803 230 Fax: +351 217 805 607	PT (LISBON)	participant	0.00
8	ISTITUTO DI RICERCA IN MEDICINA PALLIATIVA LINO MAESTRONI- Fondazione onlus  Organization address address: Via Palestro 1 city: CREMONA postcode: 26100 contact info Titolo: Dr. Nome: Francesca Cognome: Pettenati Email: send email Telefono: -20418 Fax: -20418	IT (CREMONA)	participant	0.00
9	NORGES TEKNISK-NATURVITENSKAPELIGEUNIVERSITET NTNU  Organization address address: HOGSKOLERINGEN 1 city: TRONDHEIM postcode: 7491 contact info Titolo: Prof. Nome: Torbjørn Cognome: Digernes Email: send email Telefono: +47 73 59 80 11 Fax: +47 73 59 55 20	NO (TRONDHEIM)	participant	0.00
10	UNIVERSITEIT ANTWERPEN  Organization address address: PRINSSTRAAT 13 city: ANTWERPEN postcode: 2000 contact info Titolo: Dr. Nome: Noël Cognome: Derycke Email: send email Telefono: +32 388 660 41 Fax: +32 386 619 00	BE (ANTWERPEN)	participant	0.00
11	VERENIGING VOOR CHRISTELIJK HOGER ONDERWIJS WETENSCHAPPELIJK ONDERZOEK EN PATIENTENZORG  Organization address address: De Boelelaan 1105 city: AMSTERDAM postcode: 1081 HV contact info Titolo: Mr. Nome: Barry Cognome: De Wit Email: send email Telefono: +31 204449688 Fax: +31 204448181	NL (AMSTERDAM)	participant	0.00

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 Obiettivo del progetto (Objective)

'There is little coordination in undertaking research in end of life care. This is due to lack of agreement on what constitutes “end of life” cancer care, no information on public or clinical priorities for achieving a “good death” in a culturally diverse Europe, few appropriate measures of quality, and a lack of established best practice. “PRISMA” aims to deliver an integrated programme to coordinate research priorities and practice. The work packages will undertake actions to identify cultural differences in end of life care, establish a collaborative research agenda informed by public and clinical priorities, and draw together best practice and resources for quality measurement. The Palliative Outcome Scale (POS) is a multidimensional tool that measures the physical, psychological, spiritual and information needs of patients and families at the end of life. It has been culturally adapted in 20 EU countries and widely used by over 100 services to evaluate and improve quality of care. However, there have been no opportunities to share practice, identify shared and country-specific domains, and coordinate to improve research across Europe. By coordinating POS use, “PRISMA” will offer a model to optimise end of life care research and measurement and identify both commonalities and differences in the evaluation of quality indicators for cancer patients and their families across Europe. Incorporating wide public/clinical consultation with the coordination of POS use into this programme will advance scientifically sound practice while taking account of cultural difference and public expectations. Through integrated action, we will exchange experience, shape best practice, and plan future collaboration through identification of priorities. This will enable research to harmonise and reflect the diversity and the needs of European citizens and clinicians. Support for the POS ensures that direct impact is felt between research and daily clinical practice.'