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MyCyFAPP

Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Total Cost €

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EC-Contrib. €

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Partnership

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Project "MyCyFAPP" data sheet

The following table provides information about the project.

Coordinator
FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA 

Organization address
address: AV FERNANDO ABRIL MARTORELL 106
city: VALENCIA
postcode: 46026
website: http://www.iislafe.es

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Spain [ES]
 Project website http://www.mycyfapp.eu
 Total cost 5˙087˙507 €
 EC max contribution 5˙087˙507 € (100%)
 Programme 1. H2020-EU.3.1.4. (Active ageing and self-management of health)
 Code Call H2020-PHC-2014-single-stage
 Funding Scheme RIA
 Starting year 2015
 Duration (year-month-day) from 2015-01-01   to  2018-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA ES (VALENCIA) coordinator 1˙316˙451.00
2    STIFTELSEN SINTEF NO (TRONDHEIM) participant 661˙325.00
3    UNIVERSITAT POLITECNICA DE VALENCIA ES (VALENCIA) participant 619˙674.00
4    KATHOLIEKE UNIVERSITEIT LEUVEN BE (LEUVEN) participant 526˙375.00
5    ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM NL (ROTTERDAM) participant 342˙220.00
6    YOUSE GmbH DE (BERLIN) participant 336˙955.00
7    IMAGINARY SRL IT (MILANO) participant 331˙955.00
8    Associação para Investigação e Desenvolvimento da Faculdade de Medicina PT (Lisbon) participant 318˙191.00
9    UNIVERSITA DEGLI STUDI DI MILANO IT (MILANO) participant 222˙665.00
10    SERVICIO MADRILENO DE SALUD ES (MADRID) participant 130˙674.00
11    CYSTIC FIBROSIS EUROPE EV DE (BONN) participant 108˙816.00
12    SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA ES (PATERNA VALENCIA) participant 94˙700.00
13    SINTEF AS NO (TRONDHEIM) participant 77˙500.00

Map

 Project objective

Cystic Fibrosis (CF) is a genetic disease with the higher incidence in Europe showing c.a. 5% mortality in childhood. The majority of patients suffer from lifelong pancreatic insufficiency leading to maldigestion of food and malabsorption and consequently with malnutrition and growth stunting. An accurate enzyme replacement arises as an early nutritional intervention able to provide better nutritional status and patients’ welfare from early stages avoiding complications associated to the development of the disease. By means of our innovative and portable ICT tool we will improve the socio-economic impact of the disease, promoting healthy lifestyle, intertwining patient empowerment, education and training with self-management and prevention of secondary CF-complications. The multidisciplinary and complementary approach of this co-developed integrative PROJECT guarantees the patient’s adherence to the treatment and the best outcome of the nutritional intervention mainly in childhood. The beneficiaries of the application comprise patients, care-givers, families and health professionals as well as health monitoring authorities. MyCyFAPP is tailored designed and will be clinically validated for CF self-management and monitoring becoming a competitive market product in Europe. This APP will have a key role as decision support system, boosting the growth and competitiveness of the participating SMEs in Europe which will ensure the commercial exploitation of the results, the market uptake and the MyCyFAPP distribution for the benefit of the patient.

 Deliverables

List of deliverables.
Document on MyCyFAPP poster and leaflet Documents, reports 2019-11-28 15:55:54
2nd mid-term dissemination report Documents, reports 2019-11-28 15:55:54
Training material Documents, reports 2019-11-28 15:55:54
Clipping and press release Documents, reports 2019-11-28 15:55:54
Final Dissemination report Documents, reports 2019-11-28 15:55:54
Interviews Documents, reports 2019-11-28 15:55:54
Register follow-up on conferences and meetings Documents, reports 2019-11-28 15:55:54
WP Planning and Contingency Reports Documents, reports 2019-11-28 15:55:54
1st Mid-Term Dissemination plan of MyCyFAPP Documents, reports 2019-11-28 15:55:54
Minutes of the 3rd EBM Documents, reports 2019-11-28 15:55:54
1st Annual Progress and Annual Financial Report to the Commission Documents, reports 2019-11-28 15:55:54
Minutes of the 2nd EBM and 1st General Assambly Meeting (GAM) Documents, reports 2019-11-28 15:55:54
Dissemination plan of MyCyFAPP Documents, reports 2019-11-28 15:55:54
Nutritional Evaluation report of all the collected FRs Documents, reports 2019-11-28 15:55:53
Minutes of the 1st Executive Board Meeting (EBM) Documents, reports 2019-11-28 15:55:53
Nutritional Recommendations Guideline for the CF patients Documents, reports 2019-11-28 15:55:53
MyCyFAPP press release Documents, reports 2019-11-28 15:55:53
Data base with the FRs Other 2019-11-28 15:55:53
Protocol for the survey and the FR Documents, reports 2019-11-28 15:55:53
Nutritional composition database of the selected dishes Other 2019-11-28 15:55:53
Characterisation of dishes report Documents, reports 2019-11-28 15:55:53
Kick-off Meeting Documents, reports 2019-11-28 15:55:53

Take a look to the deliverables list in detail:  detailed list of MyCyFAPP deliverables.

 Publications

year authors and title journal last update
List of publications.
2019 Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Tiago Martins, Mar Ruperto, Carla Colombo, Victoria Fornés-Ferrer, Sandra Woodcock, Ine Claes, Inês Asseiceira, María Garriga, Anna Bulfamante, Etna Masip, Sylvia Walet, Paula Crespo, Lauretta Valmarana, Sandra Martínez-Barona, Luisa Pereira, Kris de Boeck, Carmen Ribes-Koninckx
The Relative Contribution of Food Groups to Macronutrient Intake in Children with Cystic Fibrosis: A European Multicenter Assessment
published pages: 1305-1319, ISSN: 2212-2672, DOI: 10.1016/j.jand.2019.01.003
Journal of the Academy of Nutrition and Dietetics 119/8 2019-11-28
2018 Jacqueline Floch, Annabel Zettl, Lena Fricke, Tina Weisser, Lisbet Grut, Thomas Vilarinho, Erlend Stav, Antonio Ascolese, Cornelia Schauber
User Needs in the Development of a Health App Ecosystem for Self-Management of Cystic Fibrosis: User-Centered Development Approach
published pages: e113, ISSN: 2291-5222, DOI: 10.2196/mhealth.8236
JMIR mHealth and uHealth 6/5 2019-11-28
2019 Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Irene Peinado, Ana Heredia, Carmen Ribes-Koninckx, Ana Andrés
A first approach for an evidence-based in vitro digestion method to adjust pancreatic enzyme replacement therapy in cystic fibrosis
published pages: e0212459, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0212459
PLOS ONE 14/2 2019-11-28
2019 Antonio Martinez-Millana, Annabel Zettl, Jacqueline Floch, Joaquim Calvo-Lerma, Jose Luis Sevillano, Carmen Ribes-Koninckx, Vicente Traver
The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment
published pages: e13362, ISSN: 2291-5222, DOI: 10.2196/13362
JMIR mHealth and uHealth 7/4 2019-11-28
2019 A. Asensio-Grau, I. Peinado, A. Heredia, A. Andrés
In vitro study of cheese digestion: Effect of type of cheese and intestinal conditions on macronutrients digestibility
published pages: 108278, ISSN: 0023-6438, DOI: 10.1016/j.lwt.2019.108278
LWT 113 2019-11-28
2017 Joaquim Calvo-Lerma, Celia P Martinez-Jimenez, Juan-Pablo Lázaro-Ramos, Ana Andrés, Paula Crespo-Escobar, Erlend Stav, Cornelia Schauber, Lucia Pannese, Jessie M Hulst, Lucrecia Suárez, Carla Colombo, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx
Innovative approach for self-management and social welfare of children with cystic fibrosis in Europe: development, validation and implementation of an mHealth tool (MyCyFAPP)
published pages: e014931, ISSN: 2044-6055, DOI: 10.1136/bmjopen-2016-014931
BMJ Open 7/3 2019-11-28
2019 Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Ana Heredia, Ana Andrés
In vitro digestion models to assess lipolysis: The impact of the simulated conditions of gastric and intestinal pH, bile salts and digestive fluids
published pages: 108511, ISSN: 0963-9969, DOI: 10.1016/j.foodres.2019.108511
Food Research International 125 2019-11-28
2018 Andrea Asensio-Grau, Irene Peinado, Ana Heredia, Ana Andrés
Effect of cooking methods and intestinal conditions on lipolysis, proteolysis and xanthophylls bioaccessibility of eggs
published pages: 579-586, ISSN: 1756-4646, DOI: 10.1016/j.jff.2018.05.025
Journal of Functional Foods 46 2019-11-28
2019 Carolina Paz-Yépez, Irene Peinado, Ana Heredia, Ana Andrés
Lipids digestibility and polyphenols release under in vitro digestion of dark, milk and white chocolate
published pages: 196-203, ISSN: 1756-4646, DOI: 10.1016/j.jff.2018.10.028
Journal of Functional Foods 52 2019-11-28
2019 Andrea Asensio-Grau, Joaquim Calvo-Lerma, Ana Heredia, Ana Andrés
Fat digestibility in meat products: influence of food structure and gastrointestinal conditions
published pages: 530-539, ISSN: 0963-7486, DOI: 10.1080/09637486.2018.1542665
International Journal of Food Sciences and Nutrition 70/5 2019-11-28
2018 Joaquim Calvo-Lerma, Victoria Fornés-Ferrer, Ana Heredia, Ana Andrés
In Vitro Digestion of Lipids in Real Foods: Influence of Lipid Organization Within the Food Matrix and Interactions with Nonlipid Components
published pages: 2629-2637, ISSN: 0022-1147, DOI: 10.1111/1750-3841.14343
Journal of Food Science 83/10 2019-11-28
2017 Joaquim Calvo-Lerma, Jessie M. Hulst, Inês Asseiceira, Ine Claes, Maria Garriga, Carla Colombo, Victoria Fornés, Sandra Woodcock, Tiago Martins, Mieke Boon, Mar Ruperto, Sylvia Walet, Chiara Speziali, Peter Witters, Etna Masip, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx
Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis; a European multicentre study with reference to current guidelines
published pages: 510-518, ISSN: 1569-1993, DOI: 10.1016/j.jcf.2017.03.005
Journal of Cystic Fibrosis 16/4 2019-11-28
2018 Antonio Martinez-Millana, Jessie M. Hulst, Mieke Boon, Peter Witters, Carlos Fernandez-Llatas, Ines Asseiceira, Joaquin Calvo-Lerma, Ignacio Basagoiti, Vicente Traver, Kris De Boeck, Carmen Ribes-Koninckx
Optimisation of children z-score calculation based on new statistical techniques
published pages: e0208362, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0208362
PLOS ONE 13/12 2019-11-28
2019 Carolina Paz-Yépez, Irene Peinado, Ana Heredia, Ana Andrés
Influence of particle size and intestinal conditions on in vitro lipid and protein digestibility of walnuts and peanuts
published pages: 951-959, ISSN: 0963-9969, DOI: 10.1016/j.foodres.2018.11.014
Food Research International 119 2019-11-28
2019 Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Carla Colombo, Etna Masip, Mar Ruperto, Victoria Fornés-Ferrer, Els van der Wiel, Ine Claes, Maria Garriga, Maria Roca, Paula Crespo-Escobar, Anna Bulfamante, Sandra Woodcock, Sandra Martínez-Barona, Ana Andrés, Kris de Boeck, Carmen Ribes-Koninckx
Clinical validation of an evidence-based method to adjust Pancreatic Enzyme Replacement Therapy through a prospective interventional study in paediatric patients with Cystic Fibrosis
published pages: e0213216, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0213216
PLOS ONE 14/3 2019-11-28
2019 M. Boon, J. Calvo-Lermo, I. Claes, T. Havermans, V. Fornes, I. Asseiceira, A. Bulfamente, M. Garriga, E. Massip, S. Walet, C. Barreto, C. Colombo, P. Crespo, H.M. Janssens, M. Ruperto, J. Hulst, R. Nobili, L. Pereira, E. Van der Wiel, S. Vicente, K. De Boeck, C. Ribes-Koninckx
ePS5.08 MyCyFAPP project: use of a mobile application for self-management of PERT improves gastrointestinal related quality of life in children with cystic fibrosis
published pages: S52-S53, ISSN: 1569-1993, DOI: 10.1016/s1569-1993(19)30286-3
Journal of Cystic Fibrosis 18 2019-11-28
2018 M. Boon, I. Claes, T. Havermans, V. Fornés-Ferrer, I. Asseiceira, A. Bulfamente, M. Garriga, E. Masip, S. Woodcock, S. Walet, C. Barreto, J. Calvo-Lerma, C. Colombo, P. Crespo, E. Van der Wiel, J. Hulst, S. Martinez-Barona, R. Nobili, L. Pereira, M. Ruperto, K. De Boeck, C. Ribes-Koninckx, MyCyFAPP study group
WS12.6 MyCyFAPP project: validation of the PEDsQL GI symptom scale to evaluate gastro-intestinal symptoms in children with cystic fibrosis
published pages: S23, ISSN: 1569-1993, DOI: 10.1016/s1569-1993(18)30189-9
Journal of Cystic Fibrosis 17 2019-11-28
2018 Irene Peinado, Virginia Larrea, Ana Heredia, Ana Andrés
Lipolysis kinetics of milk-fat catalyzed by an enzymatic supplement under simulated gastrointestinal conditions
published pages: 1-8, ISSN: 2212-4292, DOI: 10.1016/j.fbio.2018.02.011
Food Bioscience 23 2019-11-28

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