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ARISE SIGNED

African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Total Cost €

0

EC-Contrib. €

0

Partnership

0

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 ARISE project word cloud

Explore the words cloud of the ARISE project. It provides you a very rough idea of what is the project "ARISE" about.

clinical    reaching    assurance    chronic    setting    prevalence    care    population    exchange    multidisciplinary    training    adult    improvement    quality    scd    establishing    phenotypic    patient    people    countries    outcome    communication    performance    ehealth    populations    technologies    leadership    sickle    administrative    treatment    dissemination    haemoglobin    paediatric    prevention    complications    database    antibiotic    infections    genotypes    implementing    inter    neurocognitive    lebanon    academic    strategies    establishment    infant    diagnostic    epidemiological    cell    diagnosis    laboratory    genetic    science    scientific    disorder    sustainable    pain    transition    nutrition    african    designed    health    feasibility    newborn    counseling    disease    acute    screening    living    protocols    presentations    staff    haemoglobinopathies    registries    africa    national    stroke    techniques    sharing    overarching    wps    promotion    molecular    severe    primary    prophylaxis    agency    interaction    anaemia    enhancement    service   

Project "ARISE" data sheet

The following table provides information about the project.

Coordinator
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS 

Organization address
address: VIA ABATE EUSTASIO 30
city: VALENZANO BARI
postcode: 70010
website: www.benzifoundation.org

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Italy [IT]
 Total cost 2˙106˙800 €
 EC max contribution 2˙106˙800 € (100%)
 Programme 1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
 Code Call H2020-MSCA-RISE-2018
 Funding Scheme MSCA-RISE
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2022-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS IT (VALENZANO BARI) coordinator 230˙000.00
2    GUYS AND ST THOMAS' NHS FOUNDATIONTRUST UK (London) participant 460˙000.00
3    THE ROYAL COLLEGE OF PATHOLOGISTS UK (LONDON) participant 312˙800.00
4    GENIKO LAIKO NOSOKOMEIO ATHINON*GENERAL HOSPITAL OF ATHENS LAIKO EL (ATHINA) participant 234˙600.00
5    THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH CY (AYIOS DOMETIOS) participant 220˙800.00
6    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE FR (PARIS) participant 202˙400.00
7    UNIVERSITY COLLEGE LONDON UK (LONDON) participant 170˙200.00
8    AZIENDA OSPEDALE UNIVERSITA PADOVA IT (PADOVA) participant 151˙800.00
9    LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER UK (LONDON) participant 124˙200.00
10    AHMADU BELLO UNIVERSITY NG (ZARIA) partner 0.00
11    American University of Beirut LB (BEIRUT) partner 0.00
12    LAGOS STATE UNIVERSITY OJO NG (LAGOS) partner 0.00
13    STRATHMORE UNIVERSITY KE (NAIROBI) partner 0.00
14    THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS US (CHAMPAIGN) partner 0.00
15    UNIVERSITY OF ABUJA NG (ABUJA) partner 0.00

Map

 Project objective

The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder. Primary Objectives: - To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations; - To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes; - To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants; - To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition. In order to achieve these objectives, we designed the following WPs: Scientific Coordination and Project Management Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon. Improving laboratory diagnosis and quality assurance systems for population screening. Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and Training in Research and academic leadership. Communication and dissemination

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The information about "ARISE" are provided by the European Opendata Portal: CORDIS opendata.

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