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ARISE SIGNED

African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Total Cost €

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EC-Contrib. €

0

Partnership

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ARISE project word cloud

Explore the words cloud of the ARISE project. It provides you a very rough idea of what is the project "ARISE" about.

disorder administrative performance haemoglobin molecular newborn health counseling screening population staff infant scd african diagnostic people phenotypic care techniques establishing improvement designed scientific sustainable chronic acute treatment service training database academic protocols communication agency neurocognitive prevention transition primary haemoglobinopathies prevalence genotypes inter sickle africa overarching diagnosis sharing setting exchange disease genetic registries strategies epidemiological adult infections presentations national science promotion technologies pain wps antibiotic enhancement ehealth outcome establishment reaching quality feasibility populations nutrition anaemia patient interaction prophylaxis countries dissemination cell implementing lebanon leadership assurance living paediatric severe clinical complications stroke laboratory multidisciplinary

Project "ARISE" data sheet

The following table provides information about the project.

Coordinator	FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS Organization address address: VIA ABATE EUSTASIO 30 city: VALENZANO BARI postcode: 70010 website: www.benzifoundation.org contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Italy [IT]
Total cost	2˙106˙800 €
EC max contribution	2˙106˙800 € (100%)
Programme	1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
Code Call	H2020-MSCA-RISE-2018
Funding Scheme	MSCA-RISE
Starting year	2019
Duration (year-month-day)	from 2019-01-01 to 2022-12-31

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS Organization address address: VIA ABATE EUSTASIO 30 city: VALENZANO BARI postcode: 70010 website: www.benzifoundation.org contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (VALENZANO BARI)	coordinator	230˙000.00
2	GUYS AND ST THOMAS' NHS FOUNDATIONTRUST GUYS AND ST THOMAS' NHS FOUNDATIONTRUST Organization address address: Westminster Bridge Road city: London postcode: SE1 7EH website: http://www.guysandstthomas.nhs.uk/home.aspx contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (London)	participant	460˙000.00
3	THE ROYAL COLLEGE OF PATHOLOGISTS THE ROYAL COLLEGE OF PATHOLOGISTS Organization address address: FOURTH FLOOR 21 PRESCOT STREET city: LONDON postcode: E1 8BB website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LONDON)	participant	312˙800.00
4	GENIKO LAIKO NOSOKOMEIO ATHINONGENERAL HOSPITAL OF ATHENS LAIKO GENIKO LAIKO NOSOKOMEIO ATHINONGENERAL HOSPITAL OF ATHENS LAIKO Organization address address: AGIOU THOMA 17 city: ATHINA postcode: 11527 website: www.laiko.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (ATHINA)	participant	234˙600.00
5	THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH Organization address address: International Airport Avenue 6 city: AYIOS DOMETIOS postcode: 1683 website: www.cing.ac.cy contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CY (AYIOS DOMETIOS)	participant	220˙800.00
6	INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE Organization address address: RUE DE TOLBIAC 101 city: PARIS postcode: 75654 website: www.inserm.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (PARIS)	participant	202˙400.00
7	UNIVERSITY COLLEGE LONDON UNIVERSITY COLLEGE LONDON Organization address address: GOWER STREET city: LONDON postcode: WC1E 6BT website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LONDON)	participant	170˙200.00
8	AZIENDA OSPEDALE UNIVERSITA PADOVA AZIENDA OSPEDALE UNIVERSITA PADOVA Organization address address: VIA NICOLO GIUSTINIANI 1 city: PADOVA postcode: 35128 website: www.sanita.padova.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PADOVA)	participant	151˙800.00
9	LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER Organization address address: KEPPEL STREET city: LONDON postcode: WC1E 7HT website: http://www.lshtm.ac.uk/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LONDON)	participant	124˙200.00
10	AHMADU BELLO UNIVERSITY AHMADU BELLO UNIVERSITY Organization address address: SAMARU ZARIA KADUNA city: ZARIA postcode: 800001 website: http://www.abu.edu.ng/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NG (ZARIA)	partner	0.00
11	American University of Beirut American University of Beirut Organization address address: BLISS STREET city: BEIRUT postcode: 1107 2020 website: http://www.aub.edu.lb/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	LB (BEIRUT)	partner	0.00
12	LAGOS STATE UNIVERSITY OJO LAGOS STATE UNIVERSITY OJO Organization address address: OJO OFF BADARY EXPRESS WAY city: LAGOS postcode: n.a. website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NG (LAGOS)	partner	0.00
13	STRATHMORE UNIVERSITY STRATHMORE UNIVERSITY Organization address address: OLE SANGALE ROAD MADARAKA ESTATE city: NAIROBI postcode: 200 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	KE (NAIROBI)	partner	0.00
14	THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS Organization address address: 1901 SOUTH FIRST STREET SUITE A city: CHAMPAIGN postcode: 618207406 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	US (CHAMPAIGN)	partner	0.00
15	UNIVERSITY OF ABUJA UNIVERSITY OF ABUJA Organization address address: MAIN CAMPUS AIRPORT-GIRI ROAD city: ABUJA postcode: n.a. website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NG (ABUJA)	partner	0.00

Map

Project objective

The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder. Primary Objectives: - To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations; - To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes; - To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants; - To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition. In order to achieve these objectives, we designed the following WPs: Scientific Coordination and Project Management Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon. Improving laboratory diagnosis and quality assurance systems for population screening. Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and Training in Research and academic leadership. Communication and dissemination

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The information about "ARISE" are provided by the European Opendata Portal: CORDIS opendata.

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