ARISE SIGNED
African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement
Total Cost €
0EC-Contrib. €
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0ARISE project word cloud
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Project "ARISE" data sheet
The following table provides information about the project.
| Coordinator |
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Organization address contact info |
| Coordinator Country | Italy [IT] |
| Total cost | 2˙106˙800 € |
| EC max contribution | 2˙106˙800 € (100%) |
| Programme |
1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge) |
| Code Call | H2020-MSCA-RISE-2018 |
| Funding Scheme | MSCA-RISE |
| Starting year | 2019 |
| Duration (year-month-day) | from 2019-01-01 to 2022-12-31 |
Partnership
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Project objective
The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder. Primary Objectives: - To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations; - To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes; - To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants; - To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition. In order to achieve these objectives, we designed the following WPs: Scientific Coordination and Project Management Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon. Improving laboratory diagnosis and quality assurance systems for population screening. Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and Training in Research and academic leadership. Communication and dissemination
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The information about "ARISE" are provided by the European Opendata Portal: CORDIS opendata.
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