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ARISE SIGNED

African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Total Cost €

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EC-Contrib. €

0

Partnership

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 ARISE project word cloud

Explore the words cloud of the ARISE project. It provides you a very rough idea of what is the project "ARISE" about.

patient    presentations    populations    setting    anaemia    population    outcome    overarching    transition    exchange    technologies    designed    paediatric    sickle    treatment    assurance    africa    countries    promotion    agency    diagnostic    disease    quality    neurocognitive    registries    multidisciplinary    infections    administrative    laboratory    enhancement    sharing    chronic    national    stroke    health    prevalence    communication    implementing    improvement    feasibility    haemoglobin    counseling    acute    establishing    primary    complications    pain    dissemination    living    protocols    screening    science    academic    phenotypic    prophylaxis    strategies    staff    genotypes    african    care    leadership    infant    genetic    disorder    sustainable    clinical    performance    reaching    prevention    establishment    molecular    newborn    service    database    cell    training    epidemiological    diagnosis    scd    interaction    inter    severe    adult    haemoglobinopathies    lebanon    scientific    ehealth    nutrition    wps    techniques    antibiotic    people   

Project "ARISE" data sheet

The following table provides information about the project.

Coordinator
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS 

Organization address
address: VIA ABATE EUSTASIO 30
city: VALENZANO BARI
postcode: 70010
website: www.benzifoundation.org

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Italy [IT]
 Total cost 2˙106˙800 €
 EC max contribution 2˙106˙800 € (100%)
 Programme 1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
 Code Call H2020-MSCA-RISE-2018
 Funding Scheme MSCA-RISE
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2022-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS IT (VALENZANO BARI) coordinator 230˙000.00
2    GUYS AND ST THOMAS' NHS FOUNDATIONTRUST UK (London) participant 460˙000.00
3    THE ROYAL COLLEGE OF PATHOLOGISTS UK (LONDON) participant 312˙800.00
4    GENIKO LAIKO NOSOKOMEIO ATHINON*GENERAL HOSPITAL OF ATHENS LAIKO EL (ATHINA) participant 234˙600.00
5    THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH CY (AYIOS DOMETIOS) participant 220˙800.00
6    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE FR (PARIS) participant 202˙400.00
7    UNIVERSITY COLLEGE LONDON UK (LONDON) participant 170˙200.00
8    AZIENDA OSPEDALE UNIVERSITA PADOVA IT (PADOVA) participant 151˙800.00
9    LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER UK (LONDON) participant 124˙200.00
10    AHMADU BELLO UNIVERSITY NG (ZARIA) partner 0.00
11    American University of Beirut LB (BEIRUT) partner 0.00
12    LAGOS STATE UNIVERSITY OJO NG (LAGOS) partner 0.00
13    STRATHMORE UNIVERSITY KE (NAIROBI) partner 0.00
14    THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS US (CHAMPAIGN) partner 0.00
15    UNIVERSITY OF ABUJA NG (ABUJA) partner 0.00

Map

 Project objective

The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder. Primary Objectives: - To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations; - To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes; - To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants; - To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition. In order to achieve these objectives, we designed the following WPs: Scientific Coordination and Project Management Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon. Improving laboratory diagnosis and quality assurance systems for population screening. Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and Training in Research and academic leadership. Communication and dissemination

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The information about "ARISE" are provided by the European Opendata Portal: CORDIS opendata.

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