Opendata, web and dolomites

ARISE SIGNED

African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Total Cost €

0

EC-Contrib. €

0

Partnership

0

Views

0

 ARISE project word cloud

Explore the words cloud of the ARISE project. It provides you a very rough idea of what is the project "ARISE" about.

service    feasibility    infant    epidemiological    agency    academic    assurance    pain    stroke    infections    patient    transition    primary    living    treatment    techniques    designed    wps    inter    presentations    multidisciplinary    populations    overarching    phenotypic    complications    diagnosis    registries    technologies    care    health    laboratory    africa    ehealth    severe    prevention    screening    haemoglobinopathies    staff    population    chronic    adult    quality    sharing    leadership    clinical    countries    national    molecular    training    sickle    lebanon    disorder    dissemination    database    counseling    establishing    haemoglobin    neurocognitive    genetic    administrative    antibiotic    disease    newborn    performance    promotion    setting    science    communication    prophylaxis    enhancement    scd    acute    african    nutrition    diagnostic    implementing    genotypes    protocols    cell    improvement    sustainable    paediatric    anaemia    scientific    prevalence    interaction    people    establishment    exchange    strategies    reaching    outcome   

Project "ARISE" data sheet

The following table provides information about the project.

Coordinator
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS 

Organization address
address: VIA ABATE EUSTASIO 30
city: VALENZANO BARI
postcode: 70010
website: www.benzifoundation.org

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Italy [IT]
 Total cost 2˙106˙800 €
 EC max contribution 2˙106˙800 € (100%)
 Programme 1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
 Code Call H2020-MSCA-RISE-2018
 Funding Scheme MSCA-RISE
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2022-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS IT (VALENZANO BARI) coordinator 230˙000.00
2    GUYS AND ST THOMAS' NHS FOUNDATIONTRUST UK (London) participant 460˙000.00
3    THE ROYAL COLLEGE OF PATHOLOGISTS UK (LONDON) participant 312˙800.00
4    GENIKO LAIKO NOSOKOMEIO ATHINON*GENERAL HOSPITAL OF ATHENS LAIKO EL (ATHINA) participant 234˙600.00
5    THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH CY (AYIOS DOMETIOS) participant 220˙800.00
6    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE FR (PARIS) participant 202˙400.00
7    UNIVERSITY COLLEGE LONDON UK (LONDON) participant 170˙200.00
8    AZIENDA OSPEDALE UNIVERSITA PADOVA IT (PADOVA) participant 151˙800.00
9    LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER UK (LONDON) participant 124˙200.00
10    AHMADU BELLO UNIVERSITY NG (ZARIA) partner 0.00
11    American University of Beirut LB (BEIRUT) partner 0.00
12    LAGOS STATE UNIVERSITY OJO NG (LAGOS) partner 0.00
13    STRATHMORE UNIVERSITY KE (NAIROBI) partner 0.00
14    THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS US (CHAMPAIGN) partner 0.00
15    UNIVERSITY OF ABUJA NG (ABUJA) partner 0.00

Map

 Project objective

The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder. Primary Objectives: - To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations; - To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes; - To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants; - To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition. In order to achieve these objectives, we designed the following WPs: Scientific Coordination and Project Management Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon. Improving laboratory diagnosis and quality assurance systems for population screening. Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and Training in Research and academic leadership. Communication and dissemination

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "ARISE" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an  email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "ARISE" are provided by the European Opendata Portal: CORDIS opendata.

More projects from the same programme (H2020-EU.1.3.3.)

CONMECH (2019)

Nonsmooth Contact Dynamics

Read More  

MAIL (2019)

Identifying Marginal Lands in Europe and strengthening their contribution potentialities in a CO2sequestration strategy

Read More  

ENDORSE (2018)

Safe, Efficient and Integrated Indoor Robotic Fleet for Logistic Applications in Healthcare and Commercial Spaces

Read More