Explore the words cloud of the GCOF project. It provides you a very rough idea of what is the project "GCOF" about.
The following table provides information about the project.
UNIVERSITAIR MEDISCH CENTRUM UTRECHT
|Coordinator Country||Netherlands [NL]|
|Total cost||1˙195˙106 €|
|EC max contribution||1˙195˙106 € (100%)|
1. H2020-EU.3.1. (SOCIETAL CHALLENGES - Health, demographic change and well-being)
|Duration (year-month-day)||from 2015-01-01 to 2017-06-30|
Take a look of project's partnership.
|1||UNIVERSITAIR MEDISCH CENTRUM UTRECHT||NL (UTRECHT)||coordinator||201˙250.00|
|2||UNIVERSITY OF LEICESTER||UK (LEICESTER)||participant||134˙250.00|
|3||UNIVERSIDADE NOVA DE LISBOA||PT (LISBOA)||participant||127˙500.00|
|4||TERVEYDEN JA HYVINVOINNIN LAITOS||FI (HELSINKI)||participant||105˙312.00|
|5||THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD||UK (OXFORD)||participant||102˙500.00|
|6||OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN||AT (Vienna)||participant||92˙187.00|
|7||OBSERVA ASSOCIAZIONE||IT (VICENZA)||participant||85˙000.00|
|8||EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION||FR (Paris)||participant||72˙543.00|
|9||BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH||DE (FRANKFURT)||participant||72˙500.00|
|10||INSTITUTET FOR FREMTIDSFORSKNING FORENING||DK (KOBENHAVN)||participant||70˙000.00|
|11||SCHUURBIERS DANIEL||NL (ARNHEM)||participant||67˙062.00|
|12||AGILENT TECHNOLOGIES BELGIUM NV||BE (DIEGEM)||participant||65˙000.00|
|13||CARTAGENIA NV||BE (LEUVEN)||participant||0.00|
|14||INSTITUTO DE TECNOLOGIA QUIMICA E BIOLOGICA - UNIVERSIDADE NOVA DE LISBOA||PT (OEIRAS)||participant||0.00|
The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.
The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by: 1. Envisioning the Genetics Clinic of the Future (WP1) 2. Mapping out the concept of data control (WP2) 3. Considering ethical and legal dimensions in the consent framework (WP3) 4. Exploring novel models for use of clinical data in research and vice versa (WP4) 5. Initiating public engagement, mutual learning and dissemination (WP5) 6. Engaging policy makers (WP6)
The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.
|Report on health economic aspects of the GCOF||Documents, reports||2019-07-23 09:13:44|
|Report on mutual learning in the genetics clinic of the future||Documents, reports||2019-07-23 09:13:44|
|Report on future consent needs, and an updated consent framework for the GCOF||Documents, reports||2019-07-23 09:13:44|
|Web-based overview of consent templates and frameworks that are currently in practice in various sectors working with privacy-sensitive data||Websites, patent fillings, videos etc.||2019-07-23 09:13:44|
|Database containing simulated whole-exome or whole-genome sequencing data from 5-10 individuals||Other||2019-07-23 09:13:44|
|Evaluation report of the GCOF simulations||Documents, reports||2019-07-23 09:13:44|
|GCOF portal||Websites, patent fillings, videos etc.||2019-07-23 09:13:44|
|Survey on patient involvement in design of data control mechanisms||Websites, patent fillings, videos etc.||2019-07-23 09:13:44|
|Report on novel approaches to data access, including background study results and workshop report||Documents, reports||2019-07-23 09:13:44|
|Discussion guide for public focus groups||Websites, patent fillings, videos etc.||2019-07-23 09:13:44|
|Document describing outcome of stakeholder-engagement workshop identifying potential policy options||Documents, reports||2019-07-23 09:13:44|
|Supporting materials for mutual learning event of experts including ambassadors||Websites, patent fillings, videos etc.||2019-07-23 09:13:44|
|Report on existing tools for collection, storage and distribution of clinical data, with best practice guideline on reporting results from research||Documents, reports||2019-07-23 09:13:44|
|Interim report to the European Commission||Documents, reports||2019-07-23 09:13:44|
|White paper on patient perspectives with recommendations for novel approaches of collection, storage and distribution of clinical genomic data on rare and common diseases||Documents, reports||2019-07-23 09:13:44|
Take a look to the deliverables list in detail: detailed list of GCOF deliverables.
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The information about "GCOF" are provided by the European Opendata Portal: CORDIS opendata.