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GCOF

A stepping stone approach towards the Genetics Clinic of the Future

Total Cost €

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EC-Contrib. €

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Partnership

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Project "GCOF" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITAIR MEDISCH CENTRUM UTRECHT 

Organization address
address: HEIDELBERGLAAN 100
city: UTRECHT
postcode: 3584 CX
website: www.umcutrecht.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Project website http://geneticsclinicofthefuture.eu
 Total cost 1˙195˙106 €
 EC max contribution 1˙195˙106 € (100%)
 Programme 1. H2020-EU.3.1. (SOCIETAL CHALLENGES - Health, demographic change and well-being)
 Code Call H2020-HCO-2014
 Funding Scheme CSA
 Starting year 2015
 Duration (year-month-day) from 2015-01-01   to  2017-06-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITAIR MEDISCH CENTRUM UTRECHT NL (UTRECHT) coordinator 201˙250.00
2    UNIVERSITY OF LEICESTER UK (LEICESTER) participant 134˙250.00
3    UNIVERSIDADE NOVA DE LISBOA PT (LISBOA) participant 127˙500.00
4    TERVEYDEN JA HYVINVOINNIN LAITOS FI (HELSINKI) participant 105˙312.00
5    THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD UK (OXFORD) participant 102˙500.00
6    OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN AT (Vienna) participant 92˙187.00
7    OBSERVA ASSOCIAZIONE IT (VICENZA) participant 85˙000.00
8    EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION FR (Paris) participant 72˙543.00
9    BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH DE (FRANKFURT) participant 72˙500.00
10    INSTITUTET FOR FREMTIDSFORSKNING FORENING DK (KOBENHAVN) participant 70˙000.00
11    SCHUURBIERS DANIEL NL (ARNHEM) participant 67˙062.00
12    AGILENT TECHNOLOGIES BELGIUM NV BE (DIEGEM) participant 65˙000.00
13    CARTAGENIA NV BE (LEUVEN) participant 0.00
14    INSTITUTO DE TECNOLOGIA QUIMICA E BIOLOGICA - UNIVERSIDADE NOVA DE LISBOA PT (OEIRAS) participant 0.00

Map

 Project objective

The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.

The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by: 1. Envisioning the Genetics Clinic of the Future (WP1) 2. Mapping out the concept of data control (WP2) 3. Considering ethical and legal dimensions in the consent framework (WP3) 4. Exploring novel models for use of clinical data in research and vice versa (WP4) 5. Initiating public engagement, mutual learning and dissemination (WP5) 6. Engaging policy makers (WP6)

The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.

 Deliverables

List of deliverables.
Report on health economic aspects of the GCOF Documents, reports 2019-07-23 09:13:44
Report on mutual learning in the genetics clinic of the future Documents, reports 2019-07-23 09:13:44
Report on future consent needs, and an updated consent framework for the GCOF Documents, reports 2019-07-23 09:13:44
Web-based overview of consent templates and frameworks that are currently in practice in various sectors working with privacy-sensitive data Websites, patent fillings, videos etc. 2019-07-23 09:13:44
Database containing simulated whole-exome or whole-genome sequencing data from 5-10 individuals Other 2019-07-23 09:13:44
Evaluation report of the GCOF simulations Documents, reports 2019-07-23 09:13:44
GCOF portal Websites, patent fillings, videos etc. 2019-07-23 09:13:44
Survey on patient involvement in design of data control mechanisms Websites, patent fillings, videos etc. 2019-07-23 09:13:44
Report on novel approaches to data access, including background study results and workshop report Documents, reports 2019-07-23 09:13:44
Discussion guide for public focus groups Websites, patent fillings, videos etc. 2019-07-23 09:13:44
Document describing outcome of stakeholder-engagement workshop identifying potential policy options Documents, reports 2019-07-23 09:13:44
Supporting materials for mutual learning event of experts including ambassadors Websites, patent fillings, videos etc. 2019-07-23 09:13:44
Report on existing tools for collection, storage and distribution of clinical data, with best practice guideline on reporting results from research Documents, reports 2019-07-23 09:13:44
Interim report to the European Commission Documents, reports 2019-07-23 09:13:44
White paper on patient perspectives with recommendations for novel approaches of collection, storage and distribution of clinical genomic data on rare and common diseases Documents, reports 2019-07-23 09:13:44

Take a look to the deliverables list in detail:  detailed list of GCOF deliverables.

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The information about "GCOF" are provided by the European Opendata Portal: CORDIS opendata.

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