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Opendata, web and dolomites

PalliativeSedation SIGNED

The use of proportional palliative sedation for the relief of refractory symptoms: an international multicenter study

Total Cost €

0

EC-Contrib. €

0

Partnership

0

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PalliativeSedation project word cloud

Explore the words cloud of the PalliativeSedation project. It provides you a very rough idea of what is the project "PalliativeSedation" about.

policy thirdly options education renowned experiences eastern workshop caregiver firstly sixthly observational fail delphi members secondly multicenter death fourthly life 2009 foreseen symptoms due titration consciousness patient symptom relief patients indicated clinical performed delivered hastening finalization deliberation multidisciplinary eapc experts family western revision treatment disease perspective webinar comfort care lowering country review multiple taksforce advisory effect emotional moral southern caregivers consequence 16 consists coalition conventional online undertaken ie centers feed chronic cancer modified board sedatives north central congress distress offers sedation abook recommendations survey restricted countries framework intentional severe decision continuous point closing too free refractory follow deep ps proportional tool procedure palliative confused fifthly

Project "PalliativeSedation" data sheet

The following table provides information about the project.

Coordinator	STICHTING KATHOLIEKE UNIVERSITEIT Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ website: www.radboudumc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Netherlands [NL]
Total cost	4˙033˙520 €
EC max contribution	4˙033˙520 € (100%)
Programme	1. H2020-EU.3.1.3. (Treating and managing disease)
Code Call	H2020-SC1-2018-Single-Stage-RTD
Funding Scheme	RIA
Starting year	2019
Duration (year-month-day)	from 2019-01-01 to 2023-12-31

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	STICHTING KATHOLIEKE UNIVERSITEIT STICHTING KATHOLIEKE UNIVERSITEIT Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ website: www.radboudumc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (NIJMEGEN)	coordinator	783˙442.00
2	UNIVERSIDAD DE NAVARRA UNIVERSIDAD DE NAVARRA Organization address address: CAMPUS UNIVERSITARIO EDIFICIO CENTRAL city: PAMPLONA postcode: 31080 website: www.unav.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (PAMPLONA)	participant	607˙125.00
3	KATHOLIEKE UNIVERSITEIT LEUVEN KATHOLIEKE UNIVERSITEIT LEUVEN Organization address address: OUDE MARKT 13 city: LEUVEN postcode: 3000 website: www.kuleuven.be contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (LEUVEN)	participant	600˙000.00
4	UNIVERSITATSKLINIKUM BONN UNIVERSITATSKLINIKUM BONN Organization address address: VENUSBERG-CAMPUS 1 city: BONN postcode: 53127 website: www.ukb.uni-bonn.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BONN)	participant	584˙000.00
5	UNIVERSITY OF LANCASTER UNIVERSITY OF LANCASTER Organization address address: BAILRIGG city: LANCASTER postcode: LA1 4YW website: www.lancaster.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LANCASTER)	participant	502˙016.00
6	LA MADDALENA SPA LA MADDALENA SPA Organization address address: VIA SAN LORENZO 312 city: PALERMO postcode: 90146 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PALERMO)	participant	321˙250.00
7	PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS Organization address address: VASVARI PAL UTCA 4 city: PECS postcode: 7622 website: www.pte.hu contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	HU (PECS)	participant	279˙250.00
8	Hospice Casa Sperantei Hospice Casa Sperantei Organization address address: STREET SITEI 17A city: Brasov postcode: 500074 website: http://www.hospice.ro/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	RO (Brasov)	participant	200˙125.00
9	EUROPEAN ASSOCIATION OF PALLIATIVE CARE EUROPEAN ASSOCIATION OF PALLIATIVE CARE Organization address address: TOEKOMSTSTRAAT 36 city: VILVOORDE postcode: 1800 website: www.eapc.brussels contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (VILVOORDE)	participant	140˙000.00
10	EUROPEAN CANCER PATIENT COALITION EUROPEAN CANCER PATIENT COALITION Organization address address: RUE MONTOYER 40 city: BRUXELLES postcode: 1000 website: www.ecpc-online.org contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (BRUXELLES)	participant	16˙312.00

Map

Project objective

Due to the rise in cancer and multiple chronic disease, the number of patients with refractory symptoms, ie severe symptoms where conventional treatment options fail, is likely to increase. In such cases palliative sedation (PS) can be indicated which involves the intentional lowering of consciousness at the end of life. However PS is too often restricted to continuous deep sedation and confused with hastening of death. This proposal offers a modified concept, namely proportional PS, with titration of sedatives up to the point of symptom control to improve patient comfort. Firstly, the project will offer a review about state-of-the-art refractory symptom management and a country survey. Secondly, an observational multicenter study will be performed in five countries to study the effect of proportional PS at patient comfort and symptom relief. Thirdly, a multiple case study of 50 cases will investigate caregivers and family experiences. Fourthly, moral case deliberation will be studied as a tool to improve multidisciplinary decision making for the treatment of refractory symptoms/PS in 16 clinical centers in 8 countries, including the effect on caregiver emotional distress. Fifthly, a Cost Consequence Analysis will be provided to feed a policy workshop and recommendations for the further development of palliative sedation in Europe. Sixthly, a revision of the 2009 EAPC framework for PS will be undertaken, using a Delphi procedure. Finally, a free online education programme will be delivered together with an abook and a closing congress and webinar to support dissemination. The project consortium consists of experts in the field of palliative care and PS from 8 North-Western, Southern, and Central-Eastern European countries. Renowned advisory board members are involved among which the European Cancer Patient Coalition to foster the patient perspective. A dedicated European taksforce for PS is foreseen as a follow up after the project's finalization.

Deliverables

List of deliverables.
Study protocol	Documents, reports	2020-02-18 16:03:52
Dissemination plan (PDER)	Documents, reports	2020-02-18 16:03:52
Cost consequence format	Demonstrators, pilots, prototypes	2020-02-18 16:03:52
List of recruited participants	Documents, reports	2020-02-18 16:03:52
Protocol for search strategy	Documents, reports	2020-02-18 16:03:52
Letter with logo/website	Websites, patent fillings, videos etc.	2020-02-18 16:03:52

Take a look to the deliverables list in detail: detailed list of PalliativeSedation deliverables.

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "PALLIATIVESEDATION" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "PALLIATIVESEDATION" are provided by the European Opendata Portal: CORDIS opendata.

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