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PalliativeSedation SIGNED

The use of proportional palliative sedation for the relief of refractory symptoms: an international multicenter study

Total Cost €

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EC-Contrib. €

0

Partnership

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 PalliativeSedation project word cloud

Explore the words cloud of the PalliativeSedation project. It provides you a very rough idea of what is the project "PalliativeSedation" about.

recommendations    framework    restricted    review    undertaken    caregiver    policy    distress    advisory    life    treatment    symptom    webinar    too    multiple    coalition    16    continuous    foreseen    lowering    finalization    family    sedation    sedatives    closing    free    patient    performed    deep    central    consciousness    tool    decision    patients    confused    palliative    online    2009    education    congress    indicated    conventional    abook    experiences    comfort    cancer    secondly    multidisciplinary    death    fourthly    delivered    revision    consists    offers    hastening    country    firstly    follow    centers    survey    sixthly    observational    point    refractory    proportional    members    multicenter    deliberation    disease    perspective    due    clinical    emotional    consequence    western    severe    southern    experts    ie    thirdly    effect    fail    intentional    caregivers    delphi    workshop    moral    eapc    countries    relief    ps    feed    symptoms    titration    care    north    renowned    taksforce    options    procedure    modified    chronic    fifthly    eastern    board   

Project "PalliativeSedation" data sheet

The following table provides information about the project.

Coordinator
STICHTING KATHOLIEKE UNIVERSITEIT 

Organization address
address: GEERT GROOTEPLEIN NOORD 9
city: NIJMEGEN
postcode: 6525 EZ
website: www.radboudumc.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Total cost 4˙033˙520 €
 EC max contribution 4˙033˙520 € (100%)
 Programme 1. H2020-EU.3.1.3. (Treating and managing disease)
 Code Call H2020-SC1-2018-Single-Stage-RTD
 Funding Scheme RIA
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2023-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    STICHTING KATHOLIEKE UNIVERSITEIT NL (NIJMEGEN) coordinator 783˙442.00
2    UNIVERSIDAD DE NAVARRA ES (PAMPLONA) participant 607˙125.00
3    KATHOLIEKE UNIVERSITEIT LEUVEN BE (LEUVEN) participant 600˙000.00
4    UNIVERSITATSKLINIKUM BONN DE (BONN) participant 584˙000.00
5    UNIVERSITY OF LANCASTER UK (LANCASTER) participant 502˙016.00
6    LA MADDALENA SPA IT (PALERMO) participant 321˙250.00
7    PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS HU (PECS) participant 279˙250.00
8    Hospice Casa Sperantei RO (Brasov) participant 200˙125.00
9    EUROPEAN ASSOCIATION OF PALLIATIVE CARE BE (VILVOORDE) participant 140˙000.00
10    EUROPEAN CANCER PATIENT COALITION BE (BRUXELLES) participant 16˙312.00

Map

 Project objective

Due to the rise in cancer and multiple chronic disease, the number of patients with refractory symptoms, ie severe symptoms where conventional treatment options fail, is likely to increase. In such cases palliative sedation (PS) can be indicated which involves the intentional lowering of consciousness at the end of life. However PS is too often restricted to continuous deep sedation and confused with hastening of death. This proposal offers a modified concept, namely proportional PS, with titration of sedatives up to the point of symptom control to improve patient comfort. Firstly, the project will offer a review about state-of-the-art refractory symptom management and a country survey. Secondly, an observational multicenter study will be performed in five countries to study the effect of proportional PS at patient comfort and symptom relief. Thirdly, a multiple case study of 50 cases will investigate caregivers and family experiences. Fourthly, moral case deliberation will be studied as a tool to improve multidisciplinary decision making for the treatment of refractory symptoms/PS in 16 clinical centers in 8 countries, including the effect on caregiver emotional distress. Fifthly, a Cost Consequence Analysis will be provided to feed a policy workshop and recommendations for the further development of palliative sedation in Europe. Sixthly, a revision of the 2009 EAPC framework for PS will be undertaken, using a Delphi procedure. Finally, a free online education programme will be delivered together with an abook and a closing congress and webinar to support dissemination. The project consortium consists of experts in the field of palliative care and PS from 8 North-Western, Southern, and Central-Eastern European countries. Renowned advisory board members are involved among which the European Cancer Patient Coalition to foster the patient perspective. A dedicated European taksforce for PS is foreseen as a follow up after the project's finalization.

 Deliverables

List of deliverables.
Study protocol Documents, reports 2020-02-18 16:03:52
Dissemination plan (PDER) Documents, reports 2020-02-18 16:03:52
Cost consequence format Demonstrators, pilots, prototypes 2020-02-18 16:03:52
List of recruited participants Documents, reports 2020-02-18 16:03:52
Protocol for search strategy Documents, reports 2020-02-18 16:03:52
Letter with logo/website Websites, patent fillings, videos etc. 2020-02-18 16:03:52

Take a look to the deliverables list in detail:  detailed list of PalliativeSedation deliverables.

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The information about "PALLIATIVESEDATION" are provided by the European Opendata Portal: CORDIS opendata.

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