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The Vitality of Disease - Quality of Life in the Making

Total Cost €


EC-Contrib. €






Project "VITAL" data sheet

The following table provides information about the project.


Organization address
address: NORREGADE 10
postcode: 1165

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Denmark [DK]
 Project website
 Total cost 1˙499˙770 €
 EC max contribution 1˙499˙770 € (100%)
 Programme 1. H2020-EU.1.1. (EXCELLENT SCIENCE - European Research Council (ERC))
 Code Call ERC-2014-STG
 Funding Scheme ERC-STG
 Starting year 2015
 Duration (year-month-day) from 2015-06-01   to  2021-01-31


Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    KOBENHAVNS UNIVERSITET DK (KOBENHAVN) coordinator 1˙499˙770.00


 Project objective

Epidemiological reports from around the world suggest that more people than ever before are living with (especially chronic) diseases. As a consequence, sustained efforts to reduce morbidity and mortality rates have been joined by systematised efforts to improve the lives – the quality of life – of those living with disease in ways that are measurable and auditable.

VITAL will focus on the making of ‘quality of life’. While social studies of medicine have of late been marked by a ‘bio-turn’, it is apparent that within contemporary medicine, life is envisaged as much more than cellular and molecular activity; it is also a social activity and a personal experience. Not only is life sustained, it is also lived. In recent decades, morbid living – living with disease – has come to be the object of novel forms of knowledge, expertise, measurement and management while also generating new medical practices and attendant ways of relating to oneself.

VITAL suggests a shift in attention from the ways in which the social sciences have previously studied morbid living and related issues of quality of life. Rather than continue longstanding efforts to understand how people cope with disease or to refine definitions and instruments for measuring the quality of life of the sick, in VITAL we will empirically study the co-production of ‘quality of life’ within healthcare through four ethnographically-grounded studies of how ‘quality of life’ is assembled, mobilised, negotiated and practiced in concrete medical settings. The four studies will focus on how knowledge about living with disease is assembled and mobilised, on the one hand, and how morbid living is negotiated and practiced on the other.

The key outcomes of VITAL will be theoretical advancement of understandings of vitality in the 21st century beyond molecular biology and methodological innovation to facilitate empirical study of co-production processes that involve social science knowledge and practice.


year authors and title journal last update
List of publications.
2019 Arseli Dokumacı
The ‘disabilitization’ of medicine: The emergence of Quality of Life as a space to interrogate the concept of the medical model
published pages: 95269511985071, ISSN: 0952-6951, DOI: 10.1177/0952695119850716
History of the Human Sciences XX(X) 2019-09-04
2019 Jieun Lee
Living with/out Dementia in Contemporary South Korea
published pages: 0-16, ISSN: 0745-5194, DOI: 10.1111/maq.12532
Medical Anthropology Quarterly 0 2019-09-04
2019 Natasja Kingod, Bryan Cleal
Noise as Dysappearance: Attuning to a Life with Type 1 Diabetes
published pages: 1357034X1986167, ISSN: 1357-034X, DOI: 10.1177/1357034x19861671
Body & Society XX(X) 2019-09-04
2019 Arseli Dokumacı
A Theory of Microactivist Affordances
published pages: 491-519, ISSN: 0038-2876, DOI: 10.1215/00382876-7616127
South Atlantic Quarterly 118/3 2019-09-04
2018 Natasja Kingod
The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care
published pages: 136345931880014, ISSN: 1363-4593, DOI: 10.1177/1363459318800140
Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 1–17 2019-09-04
2016 Natasja Kingod, Bryan Cleal, Ayo Wahlberg, Gitte R. Husted
Online Peer-to-Peer Communities in the Daily Lives of People With Chronic Illness
published pages: 89-99, ISSN: 1049-7323, DOI: 10.1177/1049732316680203
Qualitative Health Research 27/1 2019-09-04
2018 Ayo Wahlberg
The Vitality of Disease
published pages: 727-748, ISSN: , DOI: 10.1057/978-1-137-52879-7_31
The Palgrave Handbook of Biology and Society 2019-09-04
2017 Arseli Dokumaci
Vital affordances, occupying niches: an ecological approach to disability and performance
published pages: 393-412, ISSN: 1356-9783, DOI: 10.1080/13569783.2017.1326808
Research in Drama Education: The Journal of Applied Theatre and Performance 22/3 2019-09-04

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