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CAREGIVERSPRO-MMD

Self-management interventions and mutual assistance community services, helping patients with dementia and caregivers connect with others for evaluation, support and inspiration to improve the care experience

Total Cost €

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EC-Contrib. €

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Partnership

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Project "CAREGIVERSPRO-MMD" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITAT POLITECNICA DE CATALUNYA 

Organization address
address: CALLE JORDI GIRONA 31
city: BARCELONA
postcode: 8034
website: www.upc.edu

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Spain [ES]
 Project website http://caregiversprommd-project.eu
 Total cost 4˙087˙198 €
 EC max contribution 4˙087˙198 € (100%)
 Programme 1. H2020-EU.3.1.6. (Health care provision and integrated care)
 Code Call H2020-PHC-2015-single-stage
 Funding Scheme RIA
 Starting year 2016
 Duration (year-month-day) from 2016-01-01   to  2019-04-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITAT POLITECNICA DE CATALUNYA ES (BARCELONA) coordinator 531˙381.00
2    UNIVERSITY OF HULL UK (HULL) participant 692˙775.00
3    CENTRE HOSPITALIER UNIVERSITAIRE DE ROUEN FR (ROUEN) participant 689˙875.00
4    COOPERATIVA SOCIALE COOSS MARCHE ONLUS SOCIETA COOPERATIVA PER AZIONI IT (ANCONA) participant 631˙015.00
5    ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS EL (THERMI THESSALONIKI) participant 520˙864.00
6    FUNDACIO UNIVERSITARIA DEL BAGES ES (MANRESA) participant 415˙894.00
7    Q-PLAN INTERNATIONAL ADVISORS PC EL (KALAMARIA, THESSALONIKI) participant 336˙500.00
8    MOBILESDYNAMICS SL ES (BARCELONA) participant 268˙893.00

Map

 Project objective

According to the World Health Organisation (WHO, ADI), 44 million people around the world have some form of dementia, for which there is no effective intervention, to halt or reverse the progressive cognitive impairment. As Europe’s population is ageing, long-term care for elderly citizens will become an increasing cost for society. To manage this transition healthcare policies in the EU and individual Member States are heavily focussed on extending the independent life of the elderly, with the dual aim of increasing their quality of life and reducing the costs of care.

In this project, we will build a mHealth application that is specifically targeted to caregivers and patients with mild to moderate dementia. The result is CAREGIVERSPRO-MMD: a tool integrating a broader diagnostic approach, incorporating the live-in family caregiver-patient dyad and considering this dyad as the unit of care. CAREGIVERSPRO-MMD will provide value-added services based on social networks, tailored interventions, clinical strategies and gamification for improving quality of life for dementia’s patients and caregivers that allow them to live in the community for as long as possible.

The project will comprise three phases: first, we will develop new services for patients with mild to moderate dementia and their respective caregivers to an existing application.

In the second phase, we will conduct a user-centric analysis to re-design the existing application for patients with mild to moderate dementia. The development will be steered by patients, carers and doctors, through user-centric design: we will collect feedback on each new version of the application until the design is adapted to the users’ needs. In the third phase, we will pilot the optimised application with 550 dyads (patients and their respective caregivers) and 550 controls. This will show the clinical and social benefits for patients and caregivers, as well as financial benefits for the healthcare system.

 Deliverables

List of deliverables.
Mid-Pilot preliminary analysis report Documents, reports 2019-12-05 16:09:40
Customisation guidance document - CAREGIVERSPRO-MMD 2nd version Documents, reports 2019-12-05 16:09:39
– User feedback and usability report Documents, reports 2019-12-05 16:09:40
Final Pilot analysis report Documents, reports 2019-12-05 16:09:40
450 CAREGIVERSPRO-MMD enabled tablets PCs Demonstrators, pilots, prototypes 2019-12-05 16:09:35
Ethical Approval Report Documents, reports 2019-12-05 16:09:35
Pilot Operation Manual Documents, reports 2019-12-05 16:09:35
Dissemination Plan – first version. Documents, reports 2019-12-05 16:09:35
Data Management Plan - first version Documents, reports 2019-12-05 16:09:35
Data Management Plan - interim version Documents, reports 2019-12-05 16:09:35
Customisation guidance document – CAREGIVERSPRO-MMD 1st version Documents, reports 2019-12-05 16:09:36
Accessibility Report Documents, reports 2019-12-05 16:09:35
PACT Analysis and Focus group reports Documents, reports 2019-12-05 16:09:36
Dissemination Plan – second version Documents, reports 2019-12-05 16:09:35
CAREGIVERSPRO-MMD Web Portal Websites, patent fillings, videos etc. 2019-12-05 16:09:35
Customisation guidance document for CAREGIVERSPRO-MMD platform Screening and Interventions services Documents, reports 2019-12-05 16:09:35
Usability study report Documents, reports 2019-12-05 16:09:35
Target Group Definition Documents, reports 2019-12-05 16:09:35
CAREGIVERSPRO-MMD social media accounts Websites, patent fillings, videos etc. 2019-12-05 16:09:35
Social Media Plan Documents, reports 2019-12-05 16:09:35
Dementia and psychiatric comorbidity symptoms assessment handbook Documents, reports 2019-12-05 16:09:35
Data Management Plan - final version Documents, reports 2019-12-05 16:09:40

Take a look to the deliverables list in detail:  detailed list of CAREGIVERSPRO-MMD deliverables.

 Publications

year authors and title journal last update
List of publications.
2018 L. MALHERBE, H. LINGIAH, T. SIMON, M. BERARD, A. BOUNACER, N. KADRI, I. LANDRIN
Etude européenne CAREGIVERSPRO-MMD portant sur les nouvelles technologies dédiées au soutien des personnes ayant une maladie d\'Alzheimer et apparentée et leurs aidants. Profil des aidants en France
published pages: , ISSN: , DOI:
38th national congress of the Société Française de de Gériatrie et Gérontologie 2019-12-05
2018 David Howe; Jonathan Thorpe; Rosie Dunn; Kate Cunnah; Rebecca Platt; Caroline White; Paraskevi Zafeiridi; Konstantinos Votis; Ioannis Pakiokas; Dimitrios Tzovaras; Kevin Paulson; Emma Wolverson
Engagement of people with cognitive impairment and their carers in online games –observations from the CAREGIVERSPRO-MMD study
published pages: , ISSN: , DOI: 10.5281/zenodo.2994013
28th Alzheimer Europe conference 21 2019-12-05
2019 Paliokas I., Katertsidis N., Glykos K., Tzallas A., Votis K., Tzovaras D.
Online Activity Patterns of Social Network Users who are at Risk of Cognitive Decline
published pages: , ISSN: , DOI:
3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND) 2019-12-05
2016 Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.
Effectiveness of technology-based interventions for People with Dementia (PwD)
published pages: , ISSN: , DOI: 10.5281/zenodo.826063
26th Alzheimer Europe conference 2019-12-05
2016 BERARD Marie; BOUNACER Ali; LANDRIN Isabelle; MALHERBE Laetitia; KADRI Nadir; TOUFLET Myriam; SIMON Thibault
Développement d\'une plateforme digitale intelligente pour soutenir les patients atteints de maladie d\'Alzheimer et leurs aidants
published pages: , ISSN: , DOI: 10.5281/zenodo.2936815
Congrès des Unités de Soins, d\'évaluation et de prise en charge Alzheimer 12 2019-12-05
2018 M Quintana, E Rovira, J Catena, C Pardo, M Martínez, X Girones
Abstracts Presented at the International Neuropsychological Society Mid-Year Congress 2018
published pages: 1-203, ISSN: 1355-6177, DOI: 10.1017/s1355617718001182
Journal of the International Neuropsychological Society 24/s2 2019-12-05
2016 BERARD Marie; MALHERBE Laetitia; SIMON Thibaut; TOUFLET Myriam; BOUNACER Ali; KADRI Nadir; LANDRIN Isabelle
Une plateforme digitale intelligente pour aider les patients atteints de maladie d\'Alzheimer et soutenir leurs aidants
published pages: , ISSN: , DOI: 10.5281/zenodo.2935689
36è Journées Annuelles de la Société Française de Gérontologie et de Gériatrie 16 2019-12-05
2019 Tzallas A., Katertsidis N., Paliokas I., Glykos K., Votis K., Tzovaras D.
Development of an online platform (CAREGIVERSPRO-MMD) based on social networking and gamification for people living with dementia and their caregivers
published pages: , ISSN: , DOI:
3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND) 2019-12-05
2016 Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K.
The effectiveness of web-based interventions on dementia caregivers
published pages: , ISSN: , DOI: 10.5281/zenodo.826045
26th Alzheimer Europe Conference 15 2019-12-05
2018 A. T. Tzallas, N. Katertsidis, K. Glykos, S. Segkouli, K. Votis, I. Paliokas, D. Tzovaras, C. Barrué, U. Cortés
Designing a gamified social platform for people living with dementia and their live-in family caregivers
published pages: , ISSN: , DOI:
PETRA \'18 Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference 476-481 2019-12-05
2018 PLATT Rebecca, WOLVERSON Emma, DUNN Rosie, HOWE David, OXTOBY Katie, THORPE Jonathan, PAULSON Kevin, WHITE Caroline
Communication between people with memory loss and carers on a closed online social network: A theoretical thematic analysis using Seligman’s PERMA model of wellbeing
published pages: , ISSN: , DOI:
28th Alzheimer Europe Conference PO.2.20 2019-12-05
2019 Zafeiridi, P.; Paulson, K.; Wolverson, E.; White, C.; Dunn, R.; Antomarini, M.; Cortés, U.; Barruè, C.; Paliokas, I.; García, X.G.; Landrin-Dutot, I.; Malherbe, L.
Evaluating the CAREGIVERSPRO-MMD platform for supporting people with memory problems and caregivers: A usability study
published pages: , ISSN: 1929-0748, DOI: 10.5281/zenodo.825776
JMIR Research Protocols 8 2019-12-05
2016 Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.
Consulting end-users in the design and usability of CAREGIVERSPRO-MMD: An internet based support tool designed for people with dementia and their caregivers
published pages: , ISSN: , DOI: 10.5281/zenodo.826054
26th Alzheimer Europe conference 13 2019-12-05
2018 L. MALHERBE1, H. LINGIAH1,2, T. SIMON2, M. BERARD1, L. MALHERBE1, A. BOUNACER3, N. KADRI1, I. LANDRIN1
ETUDE EUROPEENNE CAREGIVERSPRO-MMD : PROFIL DES PATIENTS EN FRANCE
published pages: , ISSN: , DOI:
Journées Annuelles de la Société Française de Gérontologie et de Gériatrie 2019-12-05
2018 P. Zafeiridi, K. Paulson, R. Dunn, E. Wolverson, C. White, J. A. Thorpe, M. Antomarini, F. Cesaroni, F. Scocchera, I. Landrin-Dutot, L. Malherbe, H. Lingiah, M. Bérard, X. Gironès, M. Quintana, U. Cortés, C. Barrué, A. Cortés, I. Paliokas, K. Votis, D. Tzovaras,
A Web-Based Platform for People with Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability
published pages: 16, ISSN: 2561-326X, DOI:
JMIR Formative Research Vol.2, Issue 1, e4 2019-12-05
2017 Paliokas Ioannis; Tzallas Alexandros; Katertsidis Nikolaos; Votis Konstantinos; Tzovaras Dimitrios
Gamification in Social Networking: A Platform for People Living with Dementia and their Caregivers
published pages: , ISSN: , DOI: 10.5281/zenodo.2994967
17th IEEE International Conference on BioInformatics and BioEngineering 2019-12-05
2017 ZAFEIRIDI Paraskevi, DUNN Rosie, PAULSON Kevin, WOLVERSON Emma, THORPE Jonathan
Investigating the understanding of technology use for people with dementia and caregivers: an exploratory study
published pages: , ISSN: , DOI:
27th Alzheimer Europe Conference 2019-12-05
2017 PAULSON Kevin, WOLVERSON Emma
User-participatory development and evaluation of a tablet computer based social networking platform CAREGIVERSPRO-MMD
published pages: , ISSN: , DOI:
27th Alzheimer’s Europe Conference 2019-12-05
2017 Catena, J.; Rovira, E.; Pardo, C.; Martinez, M.; Riera, C.; Quintana, M.; Ruiz, J.; Girones, X.
Evaluation of benefits of the CAREGIVERSPRO-MMD platform giving support and assistance to people living with dementia and their primary caregiver
published pages: , ISSN: , DOI: 10.5281/zenodo.826728
23rd National Congress of the Spanish Psychogeriatrics Society 15 2019-12-05
2018 Kate Cunnah; Emma Wolverson; Rosie Dunn; David Howe; Kevin Paulson; Rebecca Platt; Jonathan Thorpe; Caroline White
Training people with dementia and their caregivers in the use of a web-based support tool: Lessons learned
published pages: , ISSN: , DOI: 10.5281/zenodo.2994359
28th Alzheimer Europe conference 2019-12-05
2017 ZAFEIRIDI Paraskevi, DUNN Rosie, WOLVERSON Emma, PAULSON Kevin, WHITE Caroline
Exploring the effect of early-stage dementia on spousal relationship for people with dementia and caregivers
published pages: , ISSN: , DOI:
27th Alzheimer Europe Conference 2019-12-05
2018 PAULSON Kevin, WOLVERSON Emma, DUNN Rosie, THORPE Jonathan, ZAFEIRIDI Paraskevi, HOWE David, OXTOBY Katie, WHITE Caroline, PLATT Rebecca, VOTIS Konstantinos, PAKIOKAS Ioannis, TZOVARAS Dimitrios
Online games for people with memory problems and their carers– observations from CAREGIVERSPRO-MMD
published pages: , ISSN: , DOI:
28th Alzheimer Europe Conference PO.5.15 2019-12-05
2018 H. LINGIAH; L.MALHERBE; M.BERARD; T. SIMON; N.KADRI; A.BOUNACER; I.LANDRIN
Difficultés de recrutement de dyades « aidant-aidé » dans le protocole CAREGIVERSPRO-MMD portant sur les nouvelles technologies adaptées aux patients présentant des troubles neurocognitifs et à leurs aidants
published pages: , ISSN: , DOI: 10.5281/zenodo.2613642
Journées Annuelles de la Société Française de Gérontologie et de Gériatrie 11 2019-12-05
2018 Emma Wolverson; Rosie Dunn; David Howe; Kate Cunnah; Rebecca Platt; Jonathan Thorpe; Caroline White; Kevin Paulson
CAREGIVERSPRO-MMD: An online platform to support people living with dementia and their carers – UK pilot update.
published pages: , ISSN: , DOI: 10.5281/zenodo.2994639
28th Alzheimer Europe conference 2019-12-05
2017 Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.; White, C.
Developing a web-based platform for people living with dementia and their caregivers: a user-participatory study
published pages: 634, ISSN: , DOI: 10.5281/zenodo.826743
32nd International Conference of Alzheimer’s Disease International 13 2019-12-05
2016 Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K.
CAREGIVERSPRO-MMD: A European platform to support people living with dementia and their caregivers
published pages: , ISSN: , DOI: 10.5281/zenodo.826713
26th Alzheimer Europe conference 2019-12-05
2017 Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD
Developing a web-based platform for people living with dementia and their caregivers: A user-participatory study.
published pages: , ISSN: , DOI:
32nd International Conference of Alzheimer’s Disease International Poster presentation in 32nd Int 2019-12-05
2016 Zafeiridi P., Dunn R., Wolverson E., Paulson K.
CAREGIVERSPRO-MMD: A European platform to support people living with dementia and their caregivers
published pages: , ISSN: , DOI:
Oral presentation in 26th Alzheimer Europe Conference November 2016 2019-12-05
2017 Barrué C., Cortés A., Cortés U., Tétard F., Gironès X.
CAREGIVERSPRO-MMD: community services, helping patients with dementia and caregivers connect with others for evaluation, support and to improve the care experience
published pages: 23-33, ISSN: 2007-9737, DOI: 10.13053/CyS-21-1-2580
Computación y Sistemas Vol 21, No 1 2017 2019-12-05
2017 Catena, J., Rovira, E., Pardo, C., Martinez, M., Riera, C., Quintana, M., Ruiz, J., Girones, X.
Evaluation of benefits of the CAREGIVERSPRO-MMD platform giving support and assistance to people living with dementia and their primary caregiver. 
published pages: , ISSN: , DOI:
23rd National Congress of the Spanish Psychogeriatrics Society 2019-12-05
2016 Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson
Consulting end-users in the design and usability of CAREGIVERSPRO-MMD: An internet based support tool designed for people with dementia and their caregivers
published pages: , ISSN: , DOI:
Poster in 26th Alzheimer Europe conference PO3.29 November 2016 2019-12-05
2016 Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson
Effectiveness of technology-based interventions for People with Dementia (PwD)
published pages: , ISSN: , DOI:
Poster in 26th Alzheimer Europe conference PO3.28 November 2016 2019-12-05
2017 Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD
Usability study of a web-based intervention to support people living with dementia (PLWD) and their caregivers
published pages: 104, ISSN: , DOI:
Oral presentation in 32nd International Conference of Alzheimer’s Disease International April 2017 2019-12-05
2016 Zafeiridi P., Dunn R., Wolverson E., Paulson K.
The effectiveness of web-based interventions on dementia caregivers.
published pages: , ISSN: , DOI:
Poster in 26th Alzheimer Europe Conference PO3.82 November 2016 2019-12-05

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The information about "CAREGIVERSPRO-MMD" are provided by the European Opendata Portal: CORDIS opendata.

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