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OPEN SIGNED

Outcomes of Patients’ Evidence With Novel, Do-It-Yourself Artificial Pancreas Technology

Total Cost €

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EC-Contrib. €

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Partnership

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Project "OPEN" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN 

Organization address
address: BELFIELD
city: DUBLIN
postcode: 4
website: www.ucd.ie

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Ireland [IE]
 Total cost 1˙021˙200 €
 EC max contribution 1˙021˙200 € (100%)
 Programme 1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
 Code Call H2020-MSCA-RISE-2018
 Funding Scheme MSCA-RISE
 Starting year 2019
 Duration (year-month-day) from 2019-02-01   to  2022-01-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN IE (DUBLIN) coordinator 331˙200.00
2    REGION HOVEDSTADEN DK (HILLEROD) participant 276˙000.00
3    CHARITE - UNIVERSITAETSMEDIZIN BERLIN DE (BERLIN) participant 220˙800.00
4    FEDERATION INTERNATIONALE DU DIABETE REGION EUROPE AISBL BE (BRUXELLES) participant 165˙600.00
5    DEDOC LABS GMBH DE (BERLIN) participant 13˙800.00
6    T1INTERNATIONAL UK (CHELTENHAM) participant 13˙800.00

Map

 Project objective

Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.

 Publications

year authors and title journal last update
List of publications.
2019 Katarina Braune, Shane O\'Donnell, Bryan Cleal, Dana Lewis, Adrian Tappe, Ingrid Willaing, Bastian Hauck, Klemens Raile
Real-World Use of Do-It-Yourself Artificial Pancreas Systems in Children and Adolescents With Type 1 Diabetes: Online Survey and Analysis of Self-Reported Clinical Outcomes
published pages: e14087, ISSN: 2291-5222, DOI: 10.2196/14087
JMIR mHealth and uHealth 7/7 2020-04-16
2019 Shane O\'Donnell, Dana Lewis, María Marchante Fernández, Mandy Wäldchen, Bryan Cleal, Timothy Skinner, Klemens Raile, Adrian Tappe, Tebbe Ubben, Ingrid Willaing, Bastian Hauck, Saskia Wolf, Katarina Braune
Evidence on User-Led Innovation in Diabetes Technology (The OPEN Project): Protocol for a Mixed Methods Study
published pages: e15368, ISSN: 1929-0748, DOI: 10.2196/15368
JMIR Research Protocols 8/11 2020-04-16

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The information about "OPEN" are provided by the European Opendata Portal: CORDIS opendata.

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