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The Power of Silence: A Medical Anthropological Approach to AIDS Care Narratives

Total Cost €


EC-Contrib. €






 AIDSsilences project word cloud

Explore the words cloud of the AIDSsilences project. It provides you a very rough idea of what is the project "AIDSsilences" about.

respondents    policymakers    return    theorize    recognizing    continues    parts    theoretical    career    living    aids    conceptualize    insights    epistemological    understand    stigma    qualitative    receive    signal    unspeakable    caregiving    medical    tools    narratives    social    medication    silence    gathered    critical    unspoken    expertise    amsterdam    despite    scientists    illness    researcher    silences    hiv    methodology    harvard    data    unthinkable    threefold    empirical    theory    stigmatization    questions    analytical    epidemic    fight    anthropology    strengthen    develops    indonesia    inquiring    promises    people    medicine    multidisciplinary    narrative    passive    university    world    worldwide    york    defenses    houses    conceptual    proven    relation    methodological    interpret    training    structure    strategies    active    global    antiretroviral    plwha    halted    analyzing    scientific    care    contributions    theorized    shape    sometimes    forefront   

Project "AIDSsilences" data sheet

The following table provides information about the project.


Organization address
address: RAPENBURG 70
city: LEIDEN
postcode: 2311 EZ

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Project website
 Total cost 174˙864 €
 EC max contribution 174˙864 € (100%)
 Programme 1. H2020-EU.1.3.2. (Nurturing excellence by means of cross-border and cross-sector mobility)
 Code Call H2020-MSCA-IF-2015
 Funding Scheme MSCA-IF-GF
 Starting year 2017
 Duration (year-month-day) from 2017-01-01   to  2018-12-31


Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITEIT LEIDEN NL (LEIDEN) coordinator 174˙864.00


 Project objective

Despite the widespread availability of antiretroviral medication, the global AIDS epidemic has not been halted yet and stigmatization of people living with HIV and AIDS continues in most parts of the world. While the social scientific analysis of narratives of people living with HIV/AIDS (PLWHA) has proven crucial in understanding challenges in AIDS care worldwide, the silences that structure such narratives remain under-theorized. Current studies signal that silences may be defenses and active strategies rather than passive responses to stigma, but critical questions remain on how to study, conceptualize and interpret what is unspeakable and unspoken, and sometimes even unthinkable. This project develops novel analytical tools to understand silences in illness narratives. It is based on empirical data gathered in Indonesia and New York. Its objectives are threefold:

1) To conceptualize how silences shape AIDS care, by analyzing narratives of PLWHA and caregiving institutions (conceptual/empirical goal) 2) To theorize the relation between silence and narrative (theoretical goal) 3) To develop a qualitative methodology for recognizing, inquiring into, and understanding respondents’ silences (epistemological/methodological goal)

In order to reach these objectives, the researcher will receive advanced training at Harvard University, which is on the forefront of developing multidisciplinary scientific research on HIV/AIDS and narrative theory. The expertise developed at Harvard University will strengthen the medical anthropology program of the University of Amsterdam, which houses the return phase of the project. The project will enhance the career opportunities of the researcher and promises to make significant contributions to the understanding of narratives and silences in AIDS care. These insights are highly relevant for policymakers in the global fight against AIDS and for social scientists who work in the field of global medicine.


year authors and title journal last update
List of publications.
2018 Annemarie Samuels
“This Path Is Full of Thorns”: Narrative, Subjunctivity, and HIV in Indonesia
published pages: 95-114, ISSN: 0091-2131, DOI: 10.1111/etho.12194
Ethos 46/1 2019-07-25
2018 Annemarie Samuels
Narrative Navigation: HIV and (Good) Care in Aceh, Indonesia
published pages: , ISSN: 0165-005X, DOI: 10.1007/s11013-018-9602-y
Culture, Medicine, and Psychiatry 2019-07-25

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The information about "AIDSSILENCES" are provided by the European Opendata Portal: CORDIS opendata.

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