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Opendata, web and dolomites

SELNET SIGNED

Sarcoma as a model to improve diagnosis and clinical care of rare tumors through a European and Latin American multidisciplinary network

Total Cost €

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EC-Contrib. €

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Partnership

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SELNET project word cloud

Explore the words cloud of the SELNET project. It provides you a very rough idea of what is the project "SELNET" about.

drugs subtypes survival appropriate model prognosis group policies celac relapse hindered expertise incidence registry complete biobanks replicable american centers rica solid costa networks delayed malignancies tumors countries mexico scarcity models representing argentina international practitioners selnet peru data patient community collaborative improvement reference diagnoses soft healthcare financial conduct heterogeneous groups guidelines expert pathologists incorrect rcs creation care tissues quality specialists adult caribbean education translational bone medical absence create intercontinental prognostic 22 pathological preclinical risk latin life tumor spain mtbs worsen clinical cancer 30 patients strategic lack network drivers sarcoma france cancers 2 10 trials boards therapies threatening sarcomas accounting referral barrier observational adherence cancersrare poor italy core validating brazil hence multidisciplinary unavailability rare cpgs death deaths diagnosis

Project "SELNET" data sheet

The following table provides information about the project.

Coordinator	SERVICIO ANDALUZ DE SALUD Organization address address: AVENIDA DE LA CONSTITUCION 18 city: SEVILLA postcode: 41071 website: http://www.sas.junta-andalucia.es/principal/default.asp contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Spain [ES]
Total cost	3˙294˙306 €
EC max contribution	3˙092˙400 € (94%)
Programme	1. H2020-EU.3.1.3. (Treating and managing disease)
Code Call	H2020-SC1-2018-Single-Stage-RTD
Funding Scheme	RIA
Starting year	2019
Duration (year-month-day)	from 2019-01-01 to 2022-12-31

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	SERVICIO ANDALUZ DE SALUD SERVICIO ANDALUZ DE SALUD Organization address address: AVENIDA DE LA CONSTITUCION 18 city: SEVILLA postcode: 41071 website: http://www.sas.junta-andalucia.es/principal/default.asp contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (SEVILLA)	coordinator	792˙000.00
2	CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD Organization address address: RUE LAENNEC 28 city: LYON postcode: 69373 website: www.lyon.fnclcc.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (LYON)	participant	486˙000.00
3	FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMORI Organization address address: Via Venezian 1 city: Milan postcode: 20133 website: www.istitutotumori.mi.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (Milan)	participant	450˙000.00
4	ISTITUTO ORTOPEDICO RIZZOLI ISTITUTO ORTOPEDICO RIZZOLI Organization address address: VIA DI BARBIANO 1/10 city: BOLOGNA postcode: 40136 website: www.ior.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (BOLOGNA)	participant	432˙000.00
5	GRUPO ESPANOL DE INVESTIGACION EN SARCOMAS ASOCIACION GRUPO ESPANOL DE INVESTIGACION EN SARCOMAS ASOCIACION Organization address address: CALLE VELAZQUEZ 7 3RD FLOOR city: MADRID postcode: 28001 website: www.grupogeis.org contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (MADRID)	participant	306˙000.00
6	ALEXANDER FLEMING SA ALEXANDER FLEMING SA Organization address address: CARMER 1180 city: BUENOS AIRES postcode: C1426NZ website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AR (BUENOS AIRES)	participant	194˙400.00
7	FUNDACION AMOR ESPERANZA Y VIDA FUNDACION AMOR ESPERANZA Y VIDA Organization address address: AVENIDA 16 CALLES 10 Y 14 HEREDIA city: HEREDIA postcode: 40101 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CR (HEREDIA)	participant	180˙000.00
8	INSTITUTO NACIONAL DE ENFERMEDADES NEOPLASICAS-INEN INSTITUTO NACIONAL DE ENFERMEDADES NEOPLASICAS-INEN Organization address address: AV ANGAMOS ESTE 2520 URB LA CALERA DE LA MERCED city: LIMA postcode: n.a. website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PE (LIMA)	participant	176˙400.00
9	SARCOMA PATIENTS EURONET EV SARCOMA PATIENTS EURONET EV Organization address address: UNTERGASSE 36 city: WOLFERSHEIM postcode: 61200 website: www.sarcoma-patients.eu contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (WOLFERSHEIM)	participant	75˙600.00
10	FUNDACAO ANTONIO PRUDENTE FUNDACAO ANTONIO PRUDENTE Organization address address: RUA PROF ANTONIO PRUDENTE 211 city: SAO PAULO postcode: 1509010 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BR (SAO PAULO)	participant	0.00
11	Instituto Nacional de Cancerología Instituto Nacional de Cancerología Organization address address: Av. San Fernando 22 city: MEXICO postcode: 1480 website: www.incan.edu.mx contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	MX (MEXICO)	participant	0.00

Map

Project objective

Rare cancersRare cancers are associated with poor survival, accounting for 22% of new cancer diagnoses in Europe, and 30% of cancer deaths. Sarcomas are a heterogeneous group of life-threatening rare solid malignancies affecting soft and bone tissues, representing 10% of rare tumors and around 2% of adult tumors, with an incidence of 5.9/100,000/year in Europe. Appropriate management of sarcoma patients is hindered by the absence of referral policies to reference centers (RCs), incorrect or delayed diagnosis, non-adherence of therapies to clinical practice guidelines (CPGs), and lack of expertise by practitioners, which increases the risk of relapse and death. These problems worsen in the Community of Latin American and Caribbean States (CELAC) due to the scarcity or complete unavailability of RCs, expert pathologists, multidisciplinary tumor boards (MTBs), new cancer drugs, clinical trials, patient registry data, and financial resources. Hence, the SELNET project seeks to create a European and Latin American multidisciplinary network of clinical and translational specialists to improve diagnosis and clinical care in sarcomas, with the aim of validating a collaborative model replicable in other rare tumors and in other countries. Recognized cancer centers and research groups of Spain, Italy, France, Mexico, Brazil, Argentina, Costa Rica, and Peru will contribute to better rare cancer care by fostering RCs, healthcare barrier analysis, CPGs, and medical education as key improvement drivers. The core of the research work focuses on improving diagnosis and prognosis of sarcoma patients through the creation of pathological diagnosis networks, MTBs, the conduct of an international registry-based observational study to assess clinical management quality and prognostic factors, and the implementation of an strategic translational research program to develop intercontinental sarcoma biobanks, preclinical models, and a translational study with drugs in rare sarcoma subtypes.

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The information about "SELNET" are provided by the European Opendata Portal: CORDIS opendata.

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