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MyPal SIGNED

MyPal: Fostering Palliative Care of Adults and Children with Cancer through Advanced Patient Reported Outcome Systems

Total Cost €

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EC-Contrib. €

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Partnership

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Project "MyPal" data sheet

The following table provides information about the project.

Coordinator
ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS 

Organization address
address: CHARILAOU THERMI ROAD 6 KM
city: THERMI THESSALONIKI
postcode: 57001
website: www.certh.gr

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Greece [EL]
 Total cost 3˙999˙308 €
 EC max contribution 3˙999˙308 € (100%)
 Programme 1. H2020-EU.3.1.3. (Treating and managing disease)
 Code Call H2020-SC1-2018-Single-Stage-RTD
 Funding Scheme RIA
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2022-06-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS EL (THERMI THESSALONIKI) coordinator 536˙875.00
2    FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V. DE (MUNCHEN) participant 452˙500.00
3    PROMOTION SOFTWARE GMBH DE (TUBINGEN) participant 389˙750.00
4    IDRYMA TECHNOLOGIAS KAI EREVNAS EL (IRAKLEIO) participant 331˙000.00
5    UNIVERSITAT DES SAARLANDES DE (SAARBRUCKEN) participant 316˙195.00
6    UNIVERSITY OF LANCASTER UK (LANCASTER) participant 293˙931.00
7    MEDIZINISCHE HOCHSCHULE HANNOVER DE (HANNOVER) participant 282˙140.00
8    ATLANTIS HEALTHCARE UK LIMITED UK (LONDON) participant 240˙017.00
9    UNIVERSITA VITA-SALUTE SAN RAFFAELE IT (MILANO) participant 211˙250.00
10    KAROLINSKA INSTITUTET SE (STOCKHOLM) participant 206˙875.00
11    FAKULTNI NEMOCNICE BRNO CZ (BRNO) participant 160˙000.00
12    PANEPISTIMIAKO GENIKO NOSOKOMEIO IRAKLEIOU EL (IRAKLEIO) participant 159˙000.00
13    PANEPISTIMIO DYTIKIS ATTIKIS EL (AIGALEO) participant 150˙400.00
14    EUROPEAN ASSOCIATION OF PALLIATIVE CARE BE (VILVOORDE) participant 96˙250.00
15    INTERNATIONAL CHILDREN'S PALLIATIVE CARE NETWORK UK (BRISTOL) participant 86˙875.00
16    Masarykova univerzita CZ (BRNO STRED) participant 86˙250.00
17    ETHNIKI SCHOLI DIMOSIAS YGEIAS EL (ATHINA) participant 0.00

Map

 Project objective

MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) systems through their adaptation to the personal needs of the cancer patient and his/her caregiver(s). Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them with a seamless and effective way to their healthcare providers and, ultimately, foster the time for action through the rapid identification of important deviations in the patient’s state and QoL. Providing this information in a timely and comprehensive manner throughout the disease course will reinforce the potential for applying a patient-centred and integrated palliative care approach for cancer with the participation of all relevant healthcare providers (i.e. oncologists, specialized physicians, psychologists, nurses), which is necessary to cope with the specific disease. In order to accomplish its mission, MyPal will exploit technological advances on digital health to support patients, family members and healthcare providers in gaining value through this systematic and comprehensive PRO-based intervention. Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting based on conventional PRO approaches to active patient engagement and a closed-loop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer. MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies, hence targeting different age groups and cancer types. The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.

 Deliverables

List of deliverables.
MyPal ePRO personalisation and user engagement framework Documents, reports 2020-02-07 15:59:37
Initial set of tools for intervention design and advanced reporting of outcome Demonstrators, pilots, prototypes 2020-02-07 15:59:34
MyPal conceptual & reference architecture Documents, reports 2020-01-30 11:18:59
MyPal ePRO tool design Documents, reports 2020-01-30 11:18:59
MyPal palliative care context and user needs Documents, reports 2020-01-30 11:18:59
Data management plan Open Research Data Pilot 2020-01-30 11:18:59
State-of-the-art on PRO systems for palliative cancer care Documents, reports 2020-01-30 11:18:59
MyPal ethics Documents, reports 2020-01-30 11:18:59
Quality management plan Documents, reports 2020-01-30 11:18:59
Project Website Documents, reports 2020-01-30 11:18:59
MyPal clinical study protocol definition Documents, reports 2020-01-30 11:19:00

Take a look to the deliverables list in detail:  detailed list of MyPal deliverables.

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The information about "MYPAL" are provided by the European Opendata Portal: CORDIS opendata.

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