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E-Rare-3 SIGNED

ERA-NET rare disease research implementing IRDiRC objectives

Total Cost €

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EC-Contrib. €

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Partnership

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Project "E-Rare-3" data sheet

The following table provides information about the project.

Coordinator
AGENCE NATIONALE DE LA RECHERCHE 

Organization address
address: 50 avenue Daumesnil
city: PARIS
postcode: 75012
website: www.agence-nationale-recherche.fr

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country France [FR]
 Total cost 23˙290˙000 €
 EC max contribution 5˙884˙310 € (25%)
 Programme 1. H2020-EU.3.1.3. (Treating and managing disease)
 Code Call H2020-HCO-2014
 Funding Scheme ERA-NET-Cofund
 Starting year 2014
 Duration (year-month-day) from 2014-12-01   to  2020-11-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    AGENCE NATIONALE DE LA RECHERCHE FR (PARIS) coordinator 710˙253.00
2    BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG DE (BONN) participant 1˙035˙870.00
3    ZORGONDERZOEK NEDERLAND ZON NL (DEN HAAG) participant 645˙129.00
4    DEUTSCHE FORSCHUNGSGEMEINSCHAFT DE (BONN) participant 384˙635.00
5    MINISTERO DELLA SALUTE IT (ROMA) participant 384˙635.00
6    TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU TR (ANKARA) participant 384˙635.00
7    FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG AT (WIEN) participant 303˙231.00
8    REGIONE EMILIA ROMAGNA IT (BOLOGNA) participant 303˙231.00
9    INSTITUTO DE SALUD CARLOS III ES (MADRID) participant 221˙827.00
10    NARODOWE CENTRUM BADAN I ROZWOJU PL (WARSZAWA) participant 221˙827.00
11    Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii RO (Bucharest) participant 221˙827.00
12    FUNDACAO PARA A CIENCIA E A TECNOLOGIA PT (LISBOA) participant 164˙844.00
13    GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS EL (ATHENS) participant 150˙597.00
14    FEDERAAL FONDS VOOR WETENSCHAPPELIJK ONDERZOEK BE (BRUXELLES) participant 137˙166.00
15    MINISTRY OF HEALTH IL (JERUSALEM) participant 137˙166.00
16    VALSTS IZGLITIBAS ATTISTIBAS AGENTURA LV (RIGA) participant 127˙398.00
17    FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN BE (BRUSSEL) participant 124˙142.00
18    NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL HU (BUDAPEST) participant 107˙861.00
19    DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV DE (KOELN) participant 59˙018.00
20    ISTITUTO SUPERIORE DI SANITA IT (ROMA) participant 59˙018.00
21    CANADIAN INSTITUTES OF HEALTH RESEARCH CA (OTTAWA ONTARIO) participant 0.00
22    FONDS DE RECHERCHE DU QUEBEC - SANTE CA (MONTREAL QUEBEC) participant 0.00
23    GENOME CANADA CA (OTTAWA) participant 0.00
24    LATVIJAS ZINATNU AKADEMIJA LV (RIGA) participant 0.00
25    ORSZAGOS TUDOMANYOS KUTATASI ALAPPROGRAMOK IRODA HU (BUDAPEST) participant 0.00
26    OSTERREICHISCHE FORSCHUNGSFORDERUNGSGESELLSCHAFT MBH AT (WIEN) participant 0.00
27    SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG CH (Bern) participant 0.00

Map

 Project objective

Rare diseases (RD) are diseases that affect not more than 5 per 10 000 persons (according to the EU definition). 7000 distinct rare diseases exist, affecting between 6% and 8% of the population (about 30 million EU citizens). The lack of specific health policies for rare diseases and the scarcity of the expertise, translate into delayed diagnosis, few medicinal products and difficult access to care. That is why rare diseases are a prime example of a research area that strongly profits from coordination on a European scale. At present only few European countries fund research on rare diseases through specific dedicated programmes. Therefore, the funding of transnational collaborative research is the most effective joint activity to enhance the cooperation between scientists working on rare diseases in Europe and beyond. The E-Rare consortium was built to link responsible funding bodies that combine the scarce resources and fund rare disease research via Joint Transnational Calls (JTCs). The current E-Rare-3 project proposal will extend and strengthen the transnational cooperation by building on the experience and results of the previous E-Rare-1&2 programmes. The consortium comprises 26 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives. IRDiRC guidelines and policies will be implemented in the four JTCs and representatives of the IRDiRC Scientific Committees will be invited to join the Advisory Board of E-Rare-3. Members of the EUCERD group will be involved in identifying rare disease research needs. Patients’ organizations from Europe (represented by EURORDIS) and beyond will be invited as a key partner towards collaborative efforts for research promotion and funding. The collaboration with European Research Infrastructures will be consolidated to enhance efficient and participative research.

 Deliverables

List of deliverables.
Information on projects selected for funding including data on each participant and abstracts of the project proposals Documents, reports 2020-02-26 15:11:07

Take a look to the deliverables list in detail:  detailed list of E-Rare-3 deliverables.

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The information about "E-RARE-3" are provided by the European Opendata Portal: CORDIS opendata.

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