BBMRI-LPC

BBMRI - Large Prospective Cohorts

 Coordinatore HELSINGIN YLIOPISTO 

 Organization address address: YLIOPISTONKATU 4
city: HELSINGIN YLIOPISTO
postcode: 14

contact info
Titolo: Mr.
Nome: Mika
Cognome: Frederiksen
Email: send email
Telefono: 358919000000

 Nazionalità Coordinatore Finland [FI]
 Totale costo 10˙484˙065 €
 EC contributo 8˙000˙000 €
 Programma FP7-INFRASTRUCTURES
Specific Programme "Capacities": Research infrastructures
 Code Call FP7-INFRASTRUCTURES-2012-1
 Funding Scheme CP-CSA-Infra
 Anno di inizio 2013
 Periodo (anno-mese-giorno) 2013-02-01   -   2017-01-31

 Partecipanti

# participant  country  role  EC contrib. [€] 
1    HELSINGIN YLIOPISTO

 Organization address address: YLIOPISTONKATU 4
city: HELSINGIN YLIOPISTO
postcode: 14

contact info
Titolo: Mr.
Nome: Mika
Cognome: Frederiksen
Email: send email
Telefono: 358919000000

FI (HELSINGIN YLIOPISTO) coordinator 892˙411.97
2    CENTRE INTERNATIONAL DE RECHERCHE SUR LE CANCER

 Organization address address: Cours Albert-Thomas 150
city: LYON CEDEX 08
postcode: 69372

contact info
Titolo: Dr.
Nome: Olaf
Cognome: Kelm
Email: send email
Telefono: +33 4 7273 8494
Fax: +33 4 7273 8394

FR (LYON CEDEX 08) participant 963˙659.23
3    UPPSALA UNIVERSITET

 Organization address address: SANKT OLOFSGATAN 10 B
city: UPPSALA
postcode: 751 05

contact info
Titolo: Mr.
Nome: Erik
Cognome: Ullerås
Email: send email
Telefono: +46 18 471 4493
Fax: +46 18 471 4808

SE (UPPSALA) participant 512˙575.94
4    FUNDACIO PRIVADA PARC CIENTIFIC DE BARCELONA

 Organization address address: Baldiri i Reixac, 10-12
city: BARCELONA
postcode: 8028

contact info
Titolo: Mr.
Nome: Moisès
Cognome: Tarté
Email: send email
Telefono: +34 93 4037036

ES (BARCELONA) participant 494˙426.00
5    TARTU ULIKOOL

 Organization address address: ULIKOOLI 18
city: TARTU
postcode: 50090

contact info
Titolo: Mrs.
Nome: Merike
Cognome: Leego
Email: send email
Telefono: +372 5281488
Fax: +372 7374060

EE (TARTU) participant 464˙626.31
6    IMPERIAL COLLEGE OF SCIENCE, TECHNOLOGY AND MEDICINE

 Organization address address: SOUTH KENSINGTON CAMPUS EXHIBITION ROAD
city: LONDON
postcode: SW7 2AZ

contact info
Titolo: Ms.
Nome: Tatjana
Cognome: Palalic
Email: send email
Telefono: +44 20 7594 6265

UK (LONDON) participant 460˙484.58
7    GENOME RESEARCH LIMITED

 Organization address address: THE GIBBS BUILDING, EUSTON ROAD 215
city: LONDON
postcode: NW1 2BE

contact info
Titolo: Mr.
Nome: David
Cognome: Davison
Email: send email
Telefono: +44 1223 834244
Fax: +44 1223 494883

UK (LONDON) participant 453˙734.00
8    KLINIKUM RECHTS DER ISAR DER TECHNISCHEN UNIVERSITAT MUNCHEN

 Organization address address: ISMANINGER STRASSE 22
city: MUENCHEN
postcode: 81675

contact info
Titolo: Ms.
Nome: Renate
Cognome: Rädlein
Email: send email
Telefono: +49 89 4140 2842
Fax: +49 89 4140 4926

DE (MUENCHEN) participant 445˙605.17
9    HELMHOLTZ ZENTRUM MUENCHEN DEUTSCHES FORSCHUNGSZENTRUM FUER GESUNDHEIT UND UMWELT GMBH

 Organization address address: Ingolstaedter Landstrasse 1
city: MUENCHEN
postcode: 85764

contact info
Titolo: Dr.
Nome: Jürgen
Cognome: Ertel
Email: send email
Telefono: +49 89 3187 3022

DE (MUENCHEN) participant 349˙668.63
10    Medizinische Universitaet Graz

 Organization address address: AUENBRUGGERPLATZ 2
city: GRAZ
postcode: 8036

contact info
Titolo: Dr.
Nome: Michaela Th.
Cognome: Mayrhofer
Email: send email
Telefono: +43 316 380 7656
Fax: +43 316 384329

AT (GRAZ) participant 299˙300.40
11    ACADEMISCH ZIEKENHUIS LEIDEN

 Organization address address: Albinusdreef 2
city: LEIDEN
postcode: 2333 ZA

contact info
Titolo: Mr.
Nome: Ruud
Cognome: Esveld
Email: send email
Telefono: +31 71 526 9566
Fax: +31 71 526 8275

NL (LEIDEN) participant 288˙681.60
12    CAMBRIDGE PROTEIN ARRAYS LTD

 Organization address address: "BABRAHAM HALL, BABRAHAM RESEARCH CAMPUS"
city: CAMBRIDGE
postcode: CB22 3AT

contact info
Titolo: Dr.
Nome: Michael
Cognome: Taussig
Email: send email
Telefono: 441223000000
Fax: 441223000000

UK (CAMBRIDGE) participant 284˙466.00
13    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)

 Organization address address: 101 Rue de Tolbiac
city: PARIS
postcode: 75654

contact info
Titolo: Mrs.
Nome: Muriel
Cognome: Bouas
Email: send email
Telefono: +33 56274 8360

FR (PARIS) participant 245˙165.31
14    NORGES TEKNISK-NATURVITENSKAPELIGEUNIVERSITET NTNU

 Organization address address: HOGSKOLERINGEN 1
city: TRONDHEIM
postcode: 7491

contact info
Titolo: Mrs.
Nome: Janne
Cognome: østvang
Email: send email
Telefono: 4741479557

NO (TRONDHEIM) participant 226˙315.17
15    TERVEYDEN JA HYVINVOINNIN LAITOS

 Organization address address: MANNERHEIMINTIE 166
city: HELSINKI
postcode: 300

contact info
Titolo: Ms.
Nome: Sanna
Cognome: Leppämäki
Email: send email
Telefono: +358 29 524 8227

FI (HELSINKI) participant 223˙505.97
16    KAROLINSKA INSTITUTET

 Organization address address: Nobels Vag 5
city: STOCKHOLM
postcode: 17177

contact info
Titolo: Ms.
Nome: Agneta
Cognome: Häggström
Email: send email
Telefono: +46 8 52486089

SE (STOCKHOLM) participant 203˙263.31
17    ACADEMISCH ZIEKENHUIS GRONINGEN

 Organization address address: Hanzeplein 1
city: GRONINGEN
postcode: 9713 GZ

contact info
Titolo: Ms.
Nome: Johanna M
Cognome: Van Apeldoorn
Email: send email
Telefono: 31503633040
Fax: 31503632883

NL (GRONINGEN) participant 166˙026.22
18    ISLENSK ERFDAGREINING EHF

 Organization address address: Sturlugata 8
city: REYKJAVIK
postcode: 101

contact info
Titolo: Mr.
Nome: Frosti
Cognome: Jonsson
Email: send email
Telefono: +354 570 1900
Fax: +354 570 1903

IS (REYKJAVIK) participant 165˙711.48
19    UNIVERSITY OF LEICESTER

 Organization address address: University Road
city: LEICESTER
postcode: LE1 7RH

contact info
Titolo: Mrs.
Nome: Marie
Cognome: Adams
Email: send email
Telefono: +44 116 252 3332
Fax: +44 116 252 2028

UK (LEICESTER) participant 163˙431.07
20    The Research Institute of the Mc Gill University Health Centre

 Organization address address: GUY STREET 2155
city: MONTREAL
postcode: H3H 2R9

contact info
Titolo: Ms.
Nome: Susan
Cognome: James
Email: send email
Telefono: +1 514 934 71562
Fax: +1 514 843 8270

CA (MONTREAL) participant 147˙840.00
21    STATENS SERUM INSTITUT

 Organization address address: ARTILLERIVEJ 5
city: KOBENHAVN S
postcode: 2300

contact info
Titolo: Mr.
Nome: Jacob
Cognome: Winsloew
Email: send email
Telefono: +45 3268 8565

DK (KOBENHAVN S) participant 112˙589.17
22    LEGAL PATHWAYS BV

 Organization address address: KLAPHEKLAAN 8
city: AERDENHOUT
postcode: 2111 XS

contact info
Titolo: Dr.
Nome: Jasper
Cognome: Bovenberg
Email: send email
Telefono: 31638757483

NL (AERDENHOUT) participant 62˙809.00
23    "MedLawconsult (Van Veen, Toegepast Gezondheidsrecht)"

 Organization address address: Javastraat 76
city: DEN HAAG
postcode: 2585 AS

contact info
Titolo: Mr.
Nome: Evert-Ben
Cognome: Van Veen
Email: send email
Telefono: +31 70 3589772

NL (DEN HAAG) participant 56˙372.95
24    LATVIJAS BIOMEDICINAS PETIJUMU UN STUDIJU CENTRS

 Organization address address: RATSUPITES IELA 1
city: RIGA
postcode: 1067

contact info
Nome: Liga
Cognome: Vonda
Email: send email
Telefono: +371 26395042
Fax: +371 67473083

LV (RIGA) participant 47˙561.50
25    PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS

 Organization address address: VASVARI PAL UTCA 4
city: PECS
postcode: 7622

contact info
Titolo: Dr.
Nome: Józsefné
Cognome: Krutki
Email: send email
Telefono: +36 72 501510

HU (PECS) participant 47˙561.50
26    SVEUCILISTE U SPLITU (UNIVERSITY OF SPLIT)

 Organization address address: LIVANJSKA 5
city: SPLIT
postcode: 21000

contact info
Titolo: Prof.
Nome: Ozren
Cognome: Polasek
Email: send email
Telefono: 385915000000
Fax: 38521557904

HR (SPLIT) participant 47˙561.50
27    Wroclawskie Centrum Badan EIT+ Sp z o.o

 Organization address address: UL. STABLOWICKA 147
city: Wroclaw
postcode: 54 066

contact info
Titolo: Mrs.
Nome: Anna
Cognome: Zielinska
Email: send email
Telefono: +48 71 720 16 31
Fax: +48 71 720 16 00

PL (Wroclaw) participant 47˙561.50
28    NASJONALT FOLKEHELSEINSTITUTT

 Organization address address: Lovisenberggata 8
city: OSLO
postcode: 403

contact info
Titolo: Prof.
Nome: Per
Cognome: Magnus
Email: send email
Telefono: +47 21 07 82 11
Fax: +47 22 35 36 05

NO (OSLO) participant 42˙944.76
29    UNIVERSITEIT MAASTRICHT

 Organization address address: Minderbroedersberg 4-6
city: MAASTRICHT
postcode: 6200 MD

contact info
Titolo: Ms.
Nome: Judith
Cognome: Doomen
Email: send email
Telefono: +31 433881801
Fax: +3143 3881890

NL (MAASTRICHT) participant 42˙944.76
30    INTERNATIONAL PREVENTION RESEARCH INSTITUT-IPRI MANAGEMENT

 Organization address address: COURS LAFAYETTE 95
city: LYON
postcode: 69006

contact info
Titolo: Mr.
Nome: Markus
Cognome: Pasterk
Email: send email
Telefono: +33 4 72171 181
Fax: +33 4 72171 190

FR (LYON) participant 41˙195.00

Mappa


 Word cloud

Esplora la "nuvola delle parole (Word Cloud) per avere un'idea di massima del progetto.

throughput    techniques    transnational    iarc    lpc    disease    advent    samples    diseases    worldwide    infrastructure    cohorts    biomolecular    decades    sciences    cancer    agency    public    selected    costly    innovative    subjects    biobanks    expertise    healthy    data    initially    years    cohort    biomedical    international    private    bbmri    training    prospective    biobanking    health    first    networking    network   

 Obiettivo del progetto (Objective)

'In recent years, biomedical research has crossed international borders in large, collaborative studies showing the value of multidisciplinarity and scale advantage. This has yielded valuable insights and some led to new and better medicines and treatments for diseases. However, disease-focused studies provide less insight in the real disease onset, the relative disease burden in the population, and the actual comparability of selected patients. Large prospective cohort (LPC) studies following up initially healthy participants for years or decades are considered more reliable and different diseases can be studied. LPC studies require large numbers of subjects which are costly but particularly benefited from the advent of high throughput techniques providing opportunities for powerful study designs. This project unites the large study sets of the European Biobanking and Biomolecular Research Infrastructure (BBMRI) and the International Agency for Research on Cancer (IARC), thus achieving a worldwide unique scale of integration. Specifically, we aim to:1)Evaluate/improve the harmonization of individual data on health, lifestyle and other exposures;2)Develop/implement harmonized definitions of diseases;3)Improve biobanking and research technologies and develop innovative solutions facilitating high-quality, fair access to samples and data;4)Provide free transnational access by users, through study proposals selected by an open, pan-European call;5)In the framework of these studies, generate and provide access to whole genome sequences, transcriptome, proteome, metabolome and methylome data;6)Build new public-private partnerships involving large-scale prospective cohorts, and strengthening existing ones, allowing transparent industrial access to academic expertise;7) Build a network transferring the expertise of established European large-scale biobanks to new biobank initiatives under development in other countries.'

Introduzione (Teaser)

A European project is uniting the study sets of the European Biobanking and Biomolecular Resources Research Infrastructure (BBMRI) and other large trials such as the International Agency for Research on Cancer (IARC). The result will be a multidisciplinary, international research initiative on a uniquely massive scale that can deliver an unprecedented amount of data on diseases.

Descrizione progetto (Article)

Large prospective cohort (LPC) studies follow up initially healthy individuals and then for decades are considered more reliable for the study of disease data. However, they are costly as they require large numbers of subjects. The advent of high-throughput techniques confers particular advantages to LPC studies.

The http://www.bbmri-lpc-biobanks.eu (BBMRI-LPC) (BBMRI - Large prospective cohorts) project aims to facilitate scientists' access to LPC studies on human health and disease. The consortium has applied excellence in networking and training in its first phase to achieve its first scientific call in April 2014.

Dissemination has so far been very wide-reaching and includes the project website that now features a 'Helpdesk for the emerging biobanks' and a 'Biobanking article of the week'. Workshops, forum meetings and collection of a list of 54 emerging biobanks for training and networking have also been executed. The basis of a white paper has been prepared for promoting public-private partnerships within the legal arm of BBMRI, BBMRI-ERIC and BBMRI-LPC.

Participation in boards of bodies including Biological and Medical Sciences and Biomed Bridges has strengthened collaboration and networking efforts. Exploratory contacts with industry have also been initiated.

To obtain data on the available cohorts, members have drawn up approved standard operating procedures. Preparation of a report is underway on the ethical and legal requirements for access and large-scale transnational sharing of data and samples.

According to the Organisation for Economic Co-operation and Development (OECD), biobanks are an essential part of the infrastructure underpinning life sciences and biotechnology. The BBMRI-LPC research infrastructure will further implement European Research Area (ERA) visions by creating a network together with BBMRI to establish a centre of knowledge. This proposed network will promote development of innovative diagnostics and therapeutics in Europe, extending worldwide. The initiative will also facilitate multinational studies as a result of coordination and increased access to resources. Long term, the impacts should be felt in personalised medicine and other emerging new biomedical industries at the frontiers of health research.

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