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ID-EPTRI SIGNED

Infradev - European Paediatric Translational Research Infrastructure

Total Cost €

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EC-Contrib. €

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Partnership

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Project "ID-EPTRI" data sheet

The following table provides information about the project.

Coordinator
CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE 

Organization address
address: VIA NICOLO PUTIGNANI 178
city: BARI
postcode: 70122
website: www.cvbf.net

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Italy [IT]
 Total cost 3˙071˙250 €
 EC max contribution 3˙000˙000 € (98%)
 Programme 1. H2020-EU.1.4.1.1. (Developing new world-class research infrastructures)
 Code Call H2020-INFRADEV-2017-1
 Funding Scheme /RIA
 Starting year 2018
 Duration (year-month-day) from 2018-01-01   to  2019-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE IT (BARI) coordinator 493˙750.00
2    EATRIS ERIC NL (AMSTERDAM) participant 231˙875.00
3    UNIVERSITY COLLEGE LONDON UK (LONDON) participant 193˙125.00
4    FONDAZIONE PENTA-FOR THE TREATMENT AND CARE OF CHILDREN WITH HIV-ONLUS IT (PADOVA) participant 181˙875.00
5    BIOBANKS AND BIOMOLECULAR RESOURCESRESEARCH INFRASTRUCTURE CONSORTIUM(BBMRI-ERIC) AT (GRAZ) participant 180˙000.00
6    Fundació Sant Joan de Deu ES (Esplugues de Ll) participant 178˙125.00
7    ATHINA-EREVNITIKO KENTRO KAINOTOMIAS STIS TECHNOLOGIES TIS PLIROFORIAS, TON EPIKOINONION KAI TIS GNOSIS EL (MAROUSSI) participant 141˙875.00
8    ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS FR (PARIS) participant 141˙250.00
9    THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH CY (AYIOS DOMETIOS) participant 128˙750.00
10    THE UNIVERSITY OF LIVERPOOL UK (LIVERPOOL) participant 128˙750.00
11    ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK FR (PARIS) participant 124˙375.00
12    STICHTING KATHOLIEKE UNIVERSITEIT NL (NIJMEGEN) participant 122˙500.00
13    UNIVERSITATSKLINIKUM ERLANGEN DE (ERLANGEN) participant 116˙250.00
14    OSPEDALE PEDIATRICO BAMBINO GESU IT (ROMA) participant 103˙750.00
15    INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA PL (WARSZAWA) participant 97˙500.00
16    TECHNION - ISRAEL INSTITUTE OF TECHNOLOGY IL (HAIFA) participant 76˙250.00
17    SERVICIO MADRILENO DE SALUD ES (MADRID) participant 72˙500.00
18    FYZIOLOGICKY USTAV AKADEMIE VED CESKE REPUBLIKY VEREJNA VYZKUMNA INSTITUCE (VVI) CZ (PRAHA 4) participant 66˙250.00
19    UNIVERSITAIR MEDISCH CENTRUM UTRECHT NL (UTRECHT) participant 46˙875.00
20    QENDRES SPITALORE UNIVERSITARE NENETEREZA TIRANE AL (Tirana) participant 35˙000.00
21    ROMANIAN ANGEL APPEAL RO (BUCURESTI) participant 35˙000.00
22    SWISS CLINICAL TRIAL ORGANISATION CH (BERN) participant 35˙000.00
23    VASTRA GOTALANDS LANS LANDSTING SE (VANERSBORG) participant 35˙000.00
24    TARTU ULIKOOL EE (TARTU) participant 34˙375.00
25    NIZHEGORODSKIY GOSUDARSTVENNIY UNIVERSITET IM N.I. LOBACHEVSKOGO RU (NIZHNY NOVGOROD) participant 0.00

Mappa

 Project objective

The general objective of this project is to design the framework for the European Paediatric Translational Research Infrastructure (EPTRI), a new Research Infrastructure (RI) aimed to enhance technology-driven paediatric research in discovery and early development phases to be translated into clinical research and paediatric use of medicines. The starting point of the proposal is the serious lack of medicines for children in EU and worldwide as well as the lack of a development model for paediatric medicines that integrates technology-driven aspects with clinical trials. The design for this new RI will be based on the following main pillars: - To harness efficiency and delivery of paediatric research activities and services strengthening collaboration within the scientific paediatric community; - To be a complementary RI in the context of the existing RIs covering the current gaps, while avoiding any duplication; - To contribute to a one-stop-shop for advice in paediatric drug development; - To develop a paediatric research infrastructure facility collaborating with already established Research Infrastructures and Common Services. To prepare a valuable Conceptual Design Report (CDR), the project encompasses three phases. During the Context Analysis phase, that will be performed in 5 technical and scientific domains (1-Paediatric Medicines Discovery and Preclinical Studies, 2-Biomarkers, 3-Paediatric Pharmacology, 4-Formulation Science, 5-Underpinning Paediatric Studies) the perceived value and the possible gaps to be covered will be estimated by enquiring the scientific Communities, the concerned national Authorities and many other Stakeholders. During the Operational phase, the different components of the new RI will be organised including governance model strategies for interaction with national Authorities and the existing RIs, the IT-architecture model, services to be provided and a business plan. In the second year, a Feasibility phase is proposed to develop virtual exercises simulating the operations of the RI. The final result of the project will be the CDR to realize EPTRI.

 Work performed, outcomes and results:  advancements report(s) 

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