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EHDEN SIGNED

European Health Data and Evidence Network

Total Cost €

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EC-Contrib. €

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Partnership

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 EHDEN project word cloud

Explore the words cloud of the EHDEN project. It provides you a very rough idea of what is the project "EHDEN" about.

transparent    standardization    record    care    medications    ohdsi    world    generating    variety    source    unprecedented    fair    proven    datasets    bd4bo    unstructured    findable    galvanize    valid    form    engaging    ehr    participation    active    individual    eco    interoperable    generate    core    tools    amounts    share    accessible    provides    volumes    treatment    technologies    platform    patient    agencies    provenance    respecting    laboratory    vast    big    distributed    huge    perform    types    health    analytical    model    contained    engagement    leverages    diverse    combines    scalable    medical    clinical    ichom    data    cdm    regulators    utilize    reproducible    europe    services    supporting    privacy    ehden    disease    omop    local    electronic    diagnoses    standardised    structured    databases    analytics    pipelines    imi    regulations    integrating    reusable    outcomes    patients    fast    stakeholder    network    outcome    training    infrastructure    stakeholders    narratives    governance   

Project "EHDEN" data sheet

The following table provides information about the project.

Coordinator
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM 

Organization address
address: DR MOLEWATERPLEIN 40
city: ROTTERDAM
postcode: 3015 GD
website: www.erasmusmc.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Project website https://www.ehden.eu/
 Total cost 28˙917˙357 €
 EC max contribution 14˙105˙750 € (49%)
 Programme 1. H2020-EU.3.1.7. (Innovative Medicines Initiative 2 (IMI2))
 Code Call H2020-JTI-IMI2-2017-12-two-stage
 Funding Scheme IMI2-RIA
 Starting year 2018
 Duration (year-month-day) from 2018-11-01   to  2024-04-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM NL (ROTTERDAM) coordinator 8˙613˙875.00
2    SYNAPSE RESEARCH MANAGEMENT PARTNERS SL ES (MADRID) participant 944˙375.00
3    THE HYVE BV NL (UTRECHT) participant 831˙812.00
4    ODYSSEUS DATA SERVICES SRO CZ (PRAHA) participant 731˙875.00
5    THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD UK (OXFORD) participant 656˙312.00
6    UNIVERSIDADE DE AVEIRO PT (AVEIRO) participant 626˙250.00
7    NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE UK (MANCHESTER) participant 610˙000.00
8    INTERNATIONAL CONSORTIUM FOR HEALTHOUTCOMES MEASUREMENT LTD UK (LONDON) participant 341˙875.00
9    TARTU ULIKOOL EE (TARTU) participant 309˙375.00
10    FORUM EUROPEEN DES PATIENTS (FPE) LU (LUXEMBOURG) participant 236˙250.00
11    Stiftelsen WHO Collaborating Centre for International Drug Monitoring SE (UPPSALA) participant 203˙750.00
12    ABBVIE INC US (NORTH CHICAGO IL) participant 0.00
13    ASTRAZENECA AB SE (SODERTAELJE) participant 0.00
14    BAYER AKTIENGESELLSCHAFT DE (Leverkusen) participant 0.00
15    CELGENE MANAGEMENT SARL CH (BOUDRY) participant 0.00
16    Eli Lilly and Company Limited UK (Basingstoke) participant 0.00
17    INSTITUT DE RECHERCHES INTERNATIONALES SERVIER FR (SURESNES) participant 0.00
18    JANSSEN PHARMACEUTICA NV BE (BEERSE) participant 0.00
19    NOVARTIS PHARMA AG CH (BASEL) participant 0.00
20    PFIZER LIMITED UK (SANDWICH) participant 0.00
21    SANOFI-AVENTIS RECHERCHE & DEVELOPPEMENT FR (Chilly Mazarin) participant 0.00
22    UCB BIOPHARMA SRL BE (BRUXELLES) participant 0.00

Map

 Project objective

Europe is generating huge amounts of patient-level information contained in Electronic Health Record (EHR) systems and other types of health databases. These include structured data in the form of diagnoses, medications, laboratory test results, etc., and unstructured data in clinical narratives. The Electronic Health Data in a European Network (EHDEN) Consortium leverages these vast volumes of data to improve future clinical practice and individual patient outcomes by increasing our understanding of disease and treatment pathways. EHDEN will galvanize transparent and reproducible analytics that will generate valid real-world evidence to improve patient care, and enable medical outcomes-based research at an unprecedented scale. The EHDEN Consortium provides the infrastructure and eco-system supporting disease-specific projects in the IMI Big Data for Better Outcomes (BD4BO) programme. The core of EHDEN is the use of a common data model (OMOP-CDM), standardised outcome assessment (ICHOM), and transparent open-source analytics (OHDSI). The objective of the EHDEN consortium is to provide all the necessary services that enable a distributed European data network to perform fast, scalable and highly reproducible research, while respecting privacy regulations, local data provenance and governance. This will include services and tools to perform data standardization, analytical pipelines, tools to share study results, and tools for stakeholder engagement and training. The EHDEN Consortium combines active participation of stakeholder representatives with proven experience in: a) integrating different data types, methods and technologies to utilize diverse clinical datasets; b) platform development to make methods and datasets Findable, Accessible, Interoperable and Reusable (FAIR); and c) engaging a wide variety of stakeholders, including health technology assessment agencies, regulators and patients.

 Deliverables

List of deliverables.
Report on SME Certification Procedure and Data Source Grant Awarding Procedure developed and implemented Documents, reports 2020-04-10 23:45:23
Stakeholder mapping Documents, reports 2020-04-10 23:45:23
First version of the Framework for quality benchmarking Documents, reports 2020-04-10 23:45:23
Yearly Progress report on technical framework (1) Documents, reports 2020-04-10 23:45:23
First Report on the implementation of the analytical pipeline for personalized medicine Documents, reports 2020-04-10 23:45:23
Technical framework design and architecture Documents, reports 2020-04-10 23:45:23
ICHOM standards defined using OMOP terminology Documents, reports 2020-04-10 23:45:23
Selected priority therapeutic areas Documents, reports 2020-04-10 23:45:23
Selection of use cases for personalized medicine Documents, reports 2020-04-10 23:45:23
Ethics Advisory Board nomination Documents, reports 2020-04-10 23:45:23
Report on key data source/s of interest for WP1 Use Cases Documents, reports 2020-04-10 23:45:23

Take a look to the deliverables list in detail:  detailed list of EHDEN deliverables.

 Publications

year authors and title journal last update
List of publications.
2020 The EHDEN consortium
Report on the EHDEN achievements during its foundational year (Nov 2018 - Oct 2019)
published pages: , ISSN: , DOI:
2020-04-10
2019 Alina Trifan, José Luís Oliveira
Patient data discovery platforms as enablers of biomedical and translational research: A systematic review
published pages: 103154, ISSN: 1532-0464, DOI: 10.1016/j.jbi.2019.103154
Journal of Biomedical Informatics 93 2020-04-10
2019 Reisberg Sulev
Developing Computational Solutions for Personalized Medicine.
published pages: , ISSN: , DOI:
27/06/2019 2020-04-10
2019 Edward Burn, James Weaver, Daniel Morales, Albert Prats-Uribe, Antonella Delmestri, Victoria Y Strauss, Ying He, Danielle E Robinson, Rafael Pinedo-Villanueva, Spyros Kolovos, Talita Duarte-Salles, William Sproviero, Dahai Yu, Michel Van Speybroeck, Ross Williams, Luis H John, Nigel Hughes, Anthony G Sena, Ruth Costello, Belay Birlie, David Culliford, Caroline O\'Leary, Henry Morgan, Theresa Burkar
Opioid use, postoperative complications, and implant survival after unicompartmental versus total knee replacement: a population-based network study
published pages: e229-e236, ISSN: 2665-9913, DOI: 10.1016/s2665-9913(19)30075-x
The Lancet Rheumatology 1/4 2020-04-10

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