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HarmonicSS SIGNED

HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making

Total Cost €

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EC-Contrib. €

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Partnership

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Project "HarmonicSS" data sheet

The following table provides information about the project.

Coordinator
ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON 

Organization address
address: 6 CHRISTOU LADA STR
city: ATHINA
postcode: 10561
website: www.elke.uoa.gr

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Greece [EL]
 Total cost 10˙193˙125 €
 EC max contribution 9˙998˙750 € (98%)
 Programme 1. H2020-EU.3.1.1. (Understanding health, wellbeing and disease)
 Code Call H2020-SC1-2016-RTD
 Funding Scheme /RIA
 Starting year 2017
 Duration (year-month-day) from 2017-01-01   to  2020-06-30

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON EL (ATHINA) coordinator 761˙247.00
2    PANEPISTIMIO IOANNINON EL (IOANNINA) participant 765˙000.00
3    INSTITUTE OF COMMUNICATION AND COMPUTER SYSTEMS EL (ATHINA) participant 411˙250.00
4    UNIVERSITE PARIS-SUD FR (ORSAY CEDEX) participant 368˙750.00
5    UNIVERSITA DEGLI STUDI DI UDINE IT (UDINE) participant 362˙500.00
6    ATOS SPAIN SA ES (MADRID) participant 358˙750.00
7    OKLAHOMA MEDICAL RESEARCH FOUNDATION US (OKLAHOMA CITY) participant 290˙633.00
8    FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V. DE (MUNCHEN) participant 290˙000.00
9    UNIVERSITA DI PISA IT (PISA) participant 280˙740.00
10    CONSORCI INSTITUT D'INVESTIGACIONS BIOMEDIQUES AUGUST PI I SUNYER ES (BARCELONA) participant 280˙122.00
11    QUEEN MARY UNIVERSITY OF LONDON UK (LONDON) participant 280˙122.00
12    UNIVERSITA DEGLI STUDI DI ROMA LA SAPIENZA IT (ROMA) participant 279˙503.00
13    UNIVERSITY OF NEWCASTLE UPON TYNE UK (NEWCASTLE UPON TYNE) participant 279˙503.00
14    HAROKOPIO UNIVERSITY EL (ATHENS) participant 279˙132.00
15    ACADEMISCH ZIEKENHUIS GRONINGEN NL (GRONINGEN) participant 278˙885.00
16    MEDIZINISCHE HOCHSCHULE HANNOVER DE (HANNOVER) participant 277˙648.00
17    UPPSALA UNIVERSITET SE (UPPSALA) participant 277˙401.00
18    CHARITE - UNIVERSITAETSMEDIZIN BERLIN DE (BERLIN) participant 277˙031.00
19    UNIVERSITAIR MEDISCH CENTRUM UTRECHT NL (UTRECHT) participant 277˙031.00
20    UNIVERSITE DE BRETAGNE OCCIDENTALE FR (BREST) participant 276˙411.00
21    UNIVERSITE LIBRE DE BRUXELLES BE (BRUXELLES) participant 276˙411.00
22    UNIVERSITETET I BERGEN NO (BERGEN) participant 276˙411.00
23    THE UNIVERSITY OF BIRMINGHAM UK (BIRMINGHAM) participant 275˙793.00
24    UNIVERSITA DEGLI STUDI DI PERUGIA IT (PERUGIA) participant 275˙793.00
25    UNIVERSITA DEGLI STUDI DELL'AQUILA IT (L AQUILA) participant 275˙175.00
26    STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG NL (UTRECHT) participant 228˙750.00
27    ISTRAZIVACKO RAZVOJNI CENTAR ZA BIOINZENJERING BIOIRC DOO RS (KRAGUJEVAC) participant 206˙250.00
28    TECHNOLOGICAL EDUCATIONAL INSTITUTE OF CRETE EL (IRAKLEIO) participant 202˙500.00
29    ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS EL (THERMI THESSALONIKI) participant 200˙000.00
30    SCUOLA SUPERIORE DI STUDI UNIVERSITARI E DI PERFEZIONAMENTO SANT'ANNA IT (PISA) participant 200˙000.00
31    MARIOS LYMARAKIS KAI SIA EE EL (GERAKAS ATTIKI) participant 182˙500.00
32    SJOGREN'S SYNDROME FOUNDATION INC. US (BETHESDA MD) participant 178˙750.00
33    GOTTFRIED WILHELM LEIBNIZ UNIVERSITAET HANNOVER DE (HANNOVER) participant 175˙000.00
34    FUNDACIÓN PARA LA INVESTIGACIÓN E INNOVACIÓN BIOMÉDICA DE ATENCIÓN PRIMARIA ES (MADRID) participant 93˙750.00
35    EUROPEAN LEAGUE AGAINST RHEUMATISM CH (KILCHBERG) participant 0.00
36    LUNDS UNIVERSITET SE (LUND) participant 0.00

Mappa

 Project objective

HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform with open standards and tools, designed to enable secure storage, governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. The overall idea of the HarmonicSS project is to bring together the largest well characterized regional, national and international longitudinal cohorts of patients with Primary Sjögren’s Syndrome (pSS) including those participating in clinical trials, and after taking into consideration the ethical, legal, privacy and IPR issues for sharing data from different countries, to semantically interlink and harmonize them into an integrative pSS cohort structure on the cloud. Upon this harmonized cohort, services for big data mining, governance and visual analytics will be integrated, to address the identified clinical and health policy pSS unmet needs. In addition, tools for specific diagnostic procedures (e.g. ultrasonography image segmentation), patient selection for clinical trials and training will be also provided. The users of the HarmonicSS platform are researchers (basic/translational), clinicians, health policy makers and pharma companies. pSS is relevant not only due to its clinical impact but also as one of the few “model” diseases to link autoimmunity, cancer development (lymphoproliferation) and the pathogenetic role of infection. Thus, the study of pSS can facilitate research in many areas of medicine; for this reason, the possibility for sustainability and expandability of the platform is enhanced. Moreover, pSS has a significant impact on the healthcare systems, similar to that of rheumatoid arthritis.

 Work performed, outcomes and results:  advancements report(s) 

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The information about "HARMONICSS" are provided by the European Opendata Portal: CORDIS opendata.

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