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NSstop

Development of a policy to stop the suffering caused by Nodding Syndrome and Onchocerciasis associated epilepsy

Total Cost €

0

EC-Contrib. €

0

Partnership

0

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 NSstop project word cloud

Explore the words cloud of the NSstop project. It provides you a very rough idea of what is the project "NSstop" about.

estimate    advocacy    form    societal    death    innovative    caused    governmental    trained    reported    villages    epilepsy    treatment    international    community    impacts    sms    disease    clinical    communities    excess    nodding    until    stop    establishing    health    ivermectin    distributors    africa    components    workshops    erc    sudan    ns    directed    unknown    positive    tanzania    algorithms    children    pharmaceutical    groups    reduce    regions    interventions    onchocerciasis    parts    families    tune    presentations    economic    donors    psychiatric    nsethio    strategy    society    syndrome    ivm    insufficiently    surveillance    economy    stakeholder    workers    alliance    discovered    initially    calculate    prevalence    south    ministries    cure    policy    plan    reducing    head    endemic    care    scientists    prevent    oae    burden    disability    uganda    probably    nsstop    intellectual    cultural    create    negative    programs    severe    fine    prevention    industry    zone   

Project "NSstop" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITEIT ANTWERPEN 

Organization address
address: PRINSSTRAAT 13
city: ANTWERPEN
postcode: 2000
website: www.ua.ac.be

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Belgium [BE]
 Total cost 149˙687 €
 EC max contribution 149˙687 € (100%)
 Programme 1. H2020-EU.1.1. (EXCELLENT SCIENCE - European Research Council (ERC))
 Code Call ERC-2017-PoC
 Funding Scheme ERC-POC
 Starting year 2017
 Duration (year-month-day) from 2017-09-01   to  2019-02-28

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITEIT ANTWERPEN BE (ANTWERPEN) coordinator 149˙687.00

Map

 Project objective

Nodding syndrome (NS) is a form of epilepsy, characterized by head-nodding, often associated with severe intellectual disability, psychiatric problems, and early death. Initially, NS was reported only in onchocerciasis-endemic regions in Tanzania, Uganda and South Sudan. Until recently, the cause of the syndrome was unknown. Therefore, no strategy for prevention and cure was possible. Our ERC project (NSETHIO) discovered that NS is only one of the clinical presentations of onchocerciasis associated epilepsy (OAE) and that this form of epilepsy is probably present in all onchocerciasis endemic regions where onchocerciasis is insufficiently controlled. We estimate that the number of excess cases of epilepsy due to onchocerciasis could be as much as 100,000. Based on NSETHIO findings we will develop an innovative comprehensive OAE policy plan that will prevent children from developing OAE and that will reduce the negative consequences of OAE for the economy and society. This plan includes the following components: strengthening community directed ivermectin (IVM) treatment programs (IVM will stop OAE), establishing an SMS based epilepsy surveillance system by epilepsy trained community-directed IVM distributors, developing a community-based care system using evidence based OAE treatment algorithms, and a community-awareness program. We will fine tune the plan during 2 OAE stakeholder workshops, field test it in a high OAE prevalence health zone and calculate its cost. We will create an international OAE alliance including scientists and health care workers, representatives of communities and advocacy groups, WHO, Ministries of Health, non-governmental organizations, the pharmaceutical industry and donors to scale up the implementation of these interventions after the end of the NSstop project. Reducing the burden of disease caused by OAE will have great positive cultural, societal and economic impacts on affected families and villages in many parts of Africa.

 Publications

year authors and title journal last update
List of publications.
2018 Natalie V. S. Vinkeles Melchers, Sarah Mollenkopf, Robert Colebunders, Michael Edlinger, Luc E. Coffeng, Julia Irani, Trésor Zola, Joseph N. Siewe, Sake J. de Vlas, Andrea S. Winkler, Wilma A. Stolk
Burden of onchocerciasis-associated epilepsy: first estimates and research priorities
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-018-0481-9
Infectious Diseases of Poverty 7/1 2019-10-08
2018 Siewe Fodjo Joseph Nelson, Colebunders Robert
Intervention for reducing epilepsy-associated stigma
published pages: , ISSN: 1525-5050, DOI: 10.1016/j.yebeh.2018.09.011
Epilepsy & Behavior 2019-10-08
2019 Joseph F.N. Siewe, Leonard Ngarka, Godwin Tatah, Michel K. Mengnjo, Leonard N. Nfor, Eric S. Chokote, Charlotte Boullé, Cyrille Nkouonlack, Fidèle Dema, Grace A. Nkoro, Wepnyu Y. Njamnshi, Earnest N. Tabah, Anne-Cécile Zoung-Kanyi Bissek, Robert Colebunders, Alfred K. Njamnshi
Clinical presentations of onchocerciasis-associated epilepsy (OAE) in Cameroon
published pages: 70-78, ISSN: 1525-5050, DOI: 10.1016/j.yebeh.2018.11.008
Epilepsy & Behavior 90 2019-08-30
2019 Joseph Nelson Siewe Fodjo, Marieke C. J. Dekker, Richard Idro, Michel Ndahura Mandro, Pierre-Marie Preux, Alfred K. Njamnshi, Robert Colebunders
Comprehensive management of epilepsy in onchocerciasis-endemic areas: lessons learnt from community-based surveys
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0523-y
Infectious Diseases of Poverty 8/1 2019-08-30
2019 Joseph Nelson Siewe Fodjo, Marieke C. J. Dekker, Richard Idro, Michel Ndahura Mandro, Pierre-Marie Preux, Alfred K. Njamnshi, Robert Colebunders
Comprehensive management of epilepsy in onchocerciasis-endemic areas: lessons learnt from community-based surveys
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0523-y
Infectious Diseases of Poverty 8/1 2019-08-30
2019 Joseph N. F. Siewe, Chinyere N. Ukaga, Ernest O. Nwazor, Murphy O. Nwoke, Modebelu C. Nwokeji, Blessing C. Onuoha, Simon O. Nwanjor, Joel Okeke, Kate Osahor, Lilian Chimechefulam, Ann I. Ogomaka, Augustine A. Amaechi, Chika I. Ezenwa, Monika N. Ezike, Chidimma Ikpeama, Ogechi Nwachukwu, Austine I. Eriama-Joseph, Berthram E. B. Nwoke, Robert Colebunders
Low prevalence of epilepsy and onchocerciasis after more than 20 years of ivermectin treatment in the Imo River Basin in Nigeria
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0517-9
Infectious Diseases of Poverty 8/1 2019-08-30
2018 Robert Colebunders, Michel Mandro, Alfred K. Njamnshi, Michel Boussinesq, An Hotterbeekx, Joseph Kamgno, Sarah O’Neill, Adrian Hopkins, Patrick Suykerbuyk, Maria-Gloria Basáñez, Rory J. Post, Belén Pedrique, Pierre-Marie Preux, Wilma A. Stolk, Thomas B. Nutman, Richard Idro
Report of the first international workshop on onchocerciasis-associated epilepsy
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-018-0400-0
Infectious Diseases of Poverty 7/1 2019-08-30

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The information about "NSSTOP" are provided by the European Opendata Portal: CORDIS opendata.

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