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NSstop

Development of a policy to stop the suffering caused by Nodding Syndrome and Onchocerciasis associated epilepsy

Total Cost €

0

EC-Contrib. €

0

Partnership

0

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 NSstop project word cloud

Explore the words cloud of the NSstop project. It provides you a very rough idea of what is the project "NSstop" about.

stakeholder    sudan    severe    nsethio    villages    negative    intellectual    distributors    caused    donors    reduce    cultural    economic    directed    africa    interventions    families    erc    care    form    prevalence    trained    create    initially    death    plan    epilepsy    advocacy    calculate    scientists    alliance    industry    sms    tune    insufficiently    unknown    tanzania    international    ns    oae    clinical    policy    onchocerciasis    economy    regions    reducing    estimate    ministries    pharmaceutical    presentations    groups    programs    strategy    nodding    nsstop    ivermectin    parts    workers    uganda    psychiatric    children    prevent    fine    south    reported    probably    disability    treatment    health    prevention    until    positive    stop    workshops    algorithms    communities    syndrome    societal    surveillance    society    components    establishing    governmental    zone    disease    cure    community    endemic    discovered    head    burden    excess    ivm    innovative    impacts   

Project "NSstop" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITEIT ANTWERPEN 

Organization address
address: PRINSSTRAAT 13
city: ANTWERPEN
postcode: 2000
website: www.ua.ac.be

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Belgium [BE]
 Total cost 149˙687 €
 EC max contribution 149˙687 € (100%)
 Programme 1. H2020-EU.1.1. (EXCELLENT SCIENCE - European Research Council (ERC))
 Code Call ERC-2017-PoC
 Funding Scheme ERC-POC
 Starting year 2017
 Duration (year-month-day) from 2017-09-01   to  2019-02-28

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITEIT ANTWERPEN BE (ANTWERPEN) coordinator 149˙687.00

Map

 Project objective

Nodding syndrome (NS) is a form of epilepsy, characterized by head-nodding, often associated with severe intellectual disability, psychiatric problems, and early death. Initially, NS was reported only in onchocerciasis-endemic regions in Tanzania, Uganda and South Sudan. Until recently, the cause of the syndrome was unknown. Therefore, no strategy for prevention and cure was possible. Our ERC project (NSETHIO) discovered that NS is only one of the clinical presentations of onchocerciasis associated epilepsy (OAE) and that this form of epilepsy is probably present in all onchocerciasis endemic regions where onchocerciasis is insufficiently controlled. We estimate that the number of excess cases of epilepsy due to onchocerciasis could be as much as 100,000. Based on NSETHIO findings we will develop an innovative comprehensive OAE policy plan that will prevent children from developing OAE and that will reduce the negative consequences of OAE for the economy and society. This plan includes the following components: strengthening community directed ivermectin (IVM) treatment programs (IVM will stop OAE), establishing an SMS based epilepsy surveillance system by epilepsy trained community-directed IVM distributors, developing a community-based care system using evidence based OAE treatment algorithms, and a community-awareness program. We will fine tune the plan during 2 OAE stakeholder workshops, field test it in a high OAE prevalence health zone and calculate its cost. We will create an international OAE alliance including scientists and health care workers, representatives of communities and advocacy groups, WHO, Ministries of Health, non-governmental organizations, the pharmaceutical industry and donors to scale up the implementation of these interventions after the end of the NSstop project. Reducing the burden of disease caused by OAE will have great positive cultural, societal and economic impacts on affected families and villages in many parts of Africa.

 Publications

year authors and title journal last update
List of publications.
2018 Natalie V. S. Vinkeles Melchers, Sarah Mollenkopf, Robert Colebunders, Michael Edlinger, Luc E. Coffeng, Julia Irani, Trésor Zola, Joseph N. Siewe, Sake J. de Vlas, Andrea S. Winkler, Wilma A. Stolk
Burden of onchocerciasis-associated epilepsy: first estimates and research priorities
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-018-0481-9
Infectious Diseases of Poverty 7/1 2019-10-08
2018 Siewe Fodjo Joseph Nelson, Colebunders Robert
Intervention for reducing epilepsy-associated stigma
published pages: , ISSN: 1525-5050, DOI: 10.1016/j.yebeh.2018.09.011
Epilepsy & Behavior 2019-10-08
2019 Joseph F.N. Siewe, Leonard Ngarka, Godwin Tatah, Michel K. Mengnjo, Leonard N. Nfor, Eric S. Chokote, Charlotte Boullé, Cyrille Nkouonlack, Fidèle Dema, Grace A. Nkoro, Wepnyu Y. Njamnshi, Earnest N. Tabah, Anne-Cécile Zoung-Kanyi Bissek, Robert Colebunders, Alfred K. Njamnshi
Clinical presentations of onchocerciasis-associated epilepsy (OAE) in Cameroon
published pages: 70-78, ISSN: 1525-5050, DOI: 10.1016/j.yebeh.2018.11.008
Epilepsy & Behavior 90 2019-08-30
2019 Joseph Nelson Siewe Fodjo, Marieke C. J. Dekker, Richard Idro, Michel Ndahura Mandro, Pierre-Marie Preux, Alfred K. Njamnshi, Robert Colebunders
Comprehensive management of epilepsy in onchocerciasis-endemic areas: lessons learnt from community-based surveys
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0523-y
Infectious Diseases of Poverty 8/1 2019-08-30
2019 Joseph Nelson Siewe Fodjo, Marieke C. J. Dekker, Richard Idro, Michel Ndahura Mandro, Pierre-Marie Preux, Alfred K. Njamnshi, Robert Colebunders
Comprehensive management of epilepsy in onchocerciasis-endemic areas: lessons learnt from community-based surveys
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0523-y
Infectious Diseases of Poverty 8/1 2019-08-30
2019 Joseph N. F. Siewe, Chinyere N. Ukaga, Ernest O. Nwazor, Murphy O. Nwoke, Modebelu C. Nwokeji, Blessing C. Onuoha, Simon O. Nwanjor, Joel Okeke, Kate Osahor, Lilian Chimechefulam, Ann I. Ogomaka, Augustine A. Amaechi, Chika I. Ezenwa, Monika N. Ezike, Chidimma Ikpeama, Ogechi Nwachukwu, Austine I. Eriama-Joseph, Berthram E. B. Nwoke, Robert Colebunders
Low prevalence of epilepsy and onchocerciasis after more than 20 years of ivermectin treatment in the Imo River Basin in Nigeria
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-019-0517-9
Infectious Diseases of Poverty 8/1 2019-08-30
2018 Robert Colebunders, Michel Mandro, Alfred K. Njamnshi, Michel Boussinesq, An Hotterbeekx, Joseph Kamgno, Sarah O’Neill, Adrian Hopkins, Patrick Suykerbuyk, Maria-Gloria Basáñez, Rory J. Post, Belén Pedrique, Pierre-Marie Preux, Wilma A. Stolk, Thomas B. Nutman, Richard Idro
Report of the first international workshop on onchocerciasis-associated epilepsy
published pages: , ISSN: 2049-9957, DOI: 10.1186/s40249-018-0400-0
Infectious Diseases of Poverty 7/1 2019-08-30

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The information about "NSSTOP" are provided by the European Opendata Portal: CORDIS opendata.

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